Community Forum Archive
The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.
Seizures only during sleep
Sat, 02/12/2011 - 16:03Comments
Re: Seizures only during sleep
Submitted by amirsinad on Mon, 2011-05-09 - 23:12
Hi momo,
I'm a 28 y/o male. i've been getting seizures since i was 17 y/o and only during sleep. doesnt matter if its nap during the day or sleeping at night. i only get seizures while sleeping. i also only get them while not on my meds. i know this because there have been times i've gone off my meds (i'm taking 400mg of dilantin).
none of the doctors (4 in total) can figure out why i get them. i've done every test possible and still no clue as to what is causing my seizures.
i should also mention that i have sleep apnea which my doctor says has no historical connection to seizures but i feel like the lack of oxygen to the brain could possibly be something to investigate.
my doctor is currently researching new meds for me to go on because he says dilantin is not something i should be on for an extended time. i personally hate the way dilantin makes me feel, it causes mood swings and just makes me feel slow and depressed most of the time. my nerves are a mess while on the meds and my hands start to shake every so often. i'll keep you posted once i get the new meds.
Hi momo,
I'm a 28 y/o male. i've been getting seizures since i was 17 y/o and only during sleep. doesnt matter if its nap during the day or sleeping at night. i only get seizures while sleeping. i also only get them while not on my meds. i know this because there have been times i've gone off my meds (i'm taking 400mg of dilantin).
none of the doctors (4 in total) can figure out why i get them. i've done every test possible and still no clue as to what is causing my seizures.
i should also mention that i have sleep apnea which my doctor says has no historical connection to seizures but i feel like the lack of oxygen to the brain could possibly be something to investigate.
my doctor is currently researching new meds for me to go on because he says dilantin is not something i should be on for an extended time. i personally hate the way dilantin makes me feel, it causes mood swings and just makes me feel slow and depressed most of the time. my nerves are a mess while on the meds and my hands start to shake every so often. i'll keep you posted once i get the new meds.
Re: Seizures only during sleep
Submitted by Lindarein on Fri, 2011-05-06 - 16:33
Hi. Momof3, I noticed you say you are from the Cleveland area. I am in the same area and we are going to our first appointment with a neurologist in the middle of May. My 10 year old has what look like seizures only while sleeping, usually around an hour after falling asleep. Our pediatrician called it Night Terrors 1 1/2 years ago and again last year at her well visit. Finally, they have decided we need to see a specialist. I'd love to talk to someone with experience with all this. Let me know if you might have some time. My real email address is hrb_tutor_cleveland@yahoo.com. Anyone with related experience, I'd love to hear from you. Thanks so much. Best wishes to all of you.