Cluster Seizures

Yes, I live in Canada and once you make your profile public, I’ll know where you’re from too! I have not yet been referred to an epileptologist; hopefully I will be tomorrow when I call my neurologist. I’ll be sooo disappointed if she hasn’t arranged it in the last week. That’s great that Dr. Fisher is your doctor. In all of the videos I’ve watched with him narrating, I thought he seemed very knowledgeable, caring and compassionate and&nbsp; wouldn’t it be nice if he was my doctor. I hope I don’t have to wait too long to get in to a clinic in Toronto but I’ve never done this before so I’m not really sure of wait times, etc. Sorry about the confusion: I am not going to college but I tutor at a boys-only private school called St. Andrew’s College in Aurora, Ontario. You should check out their web site at <a href="http://www.sac.on.ca">www.sac.on.ca</a>&nbsp;&nbsp; It’s interactive and it’s really cool. If you click on the Virtual Tour link then click on the Tower’s Library link, you’ll see where I tutor every Mon-Fri; mostly in the evening but during spares in the day as well. I’m educated as a Chemical Engineering Technologist and I tutor in the subjects of grade 8-12 maths, grade 8-10 science, and grade 11 chemistry and biology. Both of my son’s attend school here (one in his last year and the other in grade 10). My husband has taught here for 25 years. We also live on campus (20 years now) though you can’t see our house on the virtual tour page.&nbsp; When I got to ½ the dosage of Topamax and couldn’t concentrate and focus and only want to sleep, I was mortified. I was also having daily nose bleeds and constant tinnitus. I called my neuro’s office and said the drug wasn’t working for me. She backed me off to ¼ of the dosage which I am tolerating so far. I read that if you are taking high doses of calcium and vitamin C, you shouldn’t take Topamax. I actually stopped taking both because I was aware that Topamax can cause kidney stones. The one question I might ask Dr. Fisher is whether 2,000 mg of Vitamin C and 665 mg of Ca constitute high dosages. I realized as I was typing Sept/11 that it would make anyone think of that day. Is there anyone who doesn’t know what they were doing at that time? My husband was away with a school program called ‘beyond the gates’ and I was supposed to be going to an AVON convention near the airport: yes, I was an AVON lady for a while!! Anyway, I cancelled my baby sitter and stayed home with my 2 precious boys (they were about 5 &amp; 7 at the time) until my hubby came home the next day. That’s great that you want to update your education. I took an online writing course and enjoyed it very much. I really learned a lot. Have you had to wear a helmet before? I can’t imagine the stigma that goes with that. I consider myself very lucky. If I had to have seizures, I guess the kind I’m experiencing must be the easiest to deal with. Actually, that brings up the other question that I tried to ask my neuro but she couldn’t really answer: does the fact that I experience my seizures in clusters only put me at particular risk for them developing into generalized seizures or even status epilepticus? I’m not sure that is a question you would actually ask Dr. Fisher regarding your own situation so don’t worry if it doesn’t come up. Thank you for asking though, T, I really do appreciate it. I don’t believe the EFA covers Canada but we have Epilepsy Canada and it further divides by province and region. But the thing I like about this web site that I haven’t seen elsewhere (in Canada) is the interactive community of other people that help me to feel less alone. And you thought your message was long.&nbsp; Phew! Take care. P By the way, it looks like our message space is narrowing by the day!! I suppose&nbsp;this is message is probably more suited to my blog...