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Cluster Seizures

Mon, 02/21/2011 - 17:24

For the last 10 years my (undiaganosed) seizures have occurred only 4-6 times a year but when they do, I get a cluster of at least a dozen and more over the course of a 24hour period.

I saw a neuro for the first time last month (Jan/11) because I didn’t realize that I might be having seizures until I did a little Googling last summer (2010). I’m assuming they are simple partial seizures since I remain conscious and aware.

My neuro said that my description (see pkimmer story) was that of seizures but I forgot to ask what kind. I’m seeing her in a week (28Feb’11) to get her assessment now that MRI has come back normal like all of my other tests. Until then, can anyone shed some light on the SEIZURE CLUSTER aspect? The only thing I’ve found in my research pertains to tonic clonic or seizures complex partial seizures where consciousness is lost. Even then, they talk about a lot fewer seizures within a 24 hour time frame so I’m quite confused about it...ANYBODY??? Thanks for listening :  ) pkimmer



Comments

Re: Cluster Seizures

Submitted by pkimmer on Sun, 2011-02-27 - 14:33

T,

I also have all my meds and suppements, vitamins... written out. Now I shall add my prescribing doctor since it wasn't my GP.

I have also typed up a table showing the date and times of my last episodes in Sept'10 with the time between each of 14 episodes and any thoughts, symptoms, when the seizures awoke me from sleeping...

As well, a medical history of anything that may be related throughout my nearly 50 years for her to keep on file.

I think I've covered everything. Let me know if you think I've missed anything.

Also, let me know if you are interested in the questions I'm going to ask. Perhaps there's something you would ask that I'm missing...

p

T,

I also have all my meds and suppements, vitamins... written out. Now I shall add my prescribing doctor since it wasn't my GP.

I have also typed up a table showing the date and times of my last episodes in Sept'10 with the time between each of 14 episodes and any thoughts, symptoms, when the seizures awoke me from sleeping...

As well, a medical history of anything that may be related throughout my nearly 50 years for her to keep on file.

I think I've covered everything. Let me know if you think I've missed anything.

Also, let me know if you are interested in the questions I'm going to ask. Perhaps there's something you would ask that I'm missing...

p

Re: Cluster Seizures

Submitted by tcameron on Sun, 2011-02-27 - 16:03

P,

Looks like you've got it!  None of my business, but... have you had epilepsy for nearly 50 years, or are you almost 50 years old?

T

P,

Looks like you've got it!  None of my business, but... have you had epilepsy for nearly 50 years, or are you almost 50 years old?

T

Re: Cluster Seizures

Submitted by pkimmer on Sun, 2011-02-27 - 16:27

Good question, T. I am almost 50 years old (in May). I've been experiencing what I now know are seizures for 10 years. I was only diagnosed a month ago.

What about you, T; how long have you been having seizures?

p

Good question, T. I am almost 50 years old (in May). I've been experiencing what I now know are seizures for 10 years. I was only diagnosed a month ago.

What about you, T; how long have you been having seizures?

p

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