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Cluster Seizures
Mon, 02/21/2011 - 17:24For the last 10 years my (undiaganosed) seizures have occurred only 4-6 times a year but when they do, I get a cluster of at least a dozen and more over the course of a 24hour period.
I saw a neuro for the first time last month (Jan/11) because I didn’t realize that I might be having seizures until I did a little Googling last summer (2010). I’m assuming they are simple partial seizures since I remain conscious and aware.
My neuro said that my description (see pkimmer story) was that of seizures but I forgot to ask what kind. I’m seeing her in a week (28Feb’11) to get her assessment now that MRI has come back normal like all of my other tests. Until then, can anyone shed some light on the SEIZURE CLUSTER aspect? The only thing I’ve found in my research pertains to tonic clonic or seizures complex partial seizures where consciousness is lost. Even then, they talk about a lot fewer seizures within a 24 hour time frame so I’m quite confused about it...ANYBODY??? Thanks for listening : ) pkimmer
Comments
Re: Cluster Seizures
Submitted by pkimmer on Sat, 2011-02-26 - 13:58
Hi tonialpha,
I wish I had gone to the emergency dept. of the hospital the last time I had these seizures (Sept'10). I had 14 within a 24 hour period; 6 of them were within an hour apart. It would have been a good time to try to find the cause of them...
Do you always lose consciousness during a complex partial seizure? I don't lose consciousness so I'm guessing that mine are simple partial. I guess that's why it never occurred to me before that I might be having seizures. I hope to find out more on Monday (28Feb'11) when I see my neurologist.
Hi tonialpha,
I wish I had gone to the emergency dept. of the hospital the last time I had these seizures (Sept'10). I had 14 within a 24 hour period; 6 of them were within an hour apart. It would have been a good time to try to find the cause of them...
Do you always lose consciousness during a complex partial seizure? I don't lose consciousness so I'm guessing that mine are simple partial. I guess that's why it never occurred to me before that I might be having seizures. I hope to find out more on Monday (28Feb'11) when I see my neurologist.
Re: Cluster Seizures
Submitted by tonialpha on Sat, 2011-02-26 - 16:24
A learned during the time period I was being recorded. I had several partial complex seizures during that time period of the Cluster. They administered medication to stop the seizure activity. I thought I was alert but I was sleepy and apparently dosed off twice and was not aware of it. The EEG recorded indicated what had occured along w/ the visual recording.
Each patient is different.
I have had 2 brain surgeries too, prior to this recording. I also have a VNS.
A learned during the time period I was being recorded. I had several partial complex seizures during that time period of the Cluster. They administered medication to stop the seizure activity. I thought I was alert but I was sleepy and apparently dosed off twice and was not aware of it. The EEG recorded indicated what had occured along w/ the visual recording.
Each patient is different.
I have had 2 brain surgeries too, prior to this recording. I also have a VNS.
Re: Cluster Seizures
Submitted by tonialpha on Tue, 2011-02-22 - 16:04
The EEGs can be normal and you can still be diagnosed as a seizure patient.
If you are monitored in a unit for a period of time and the discharges occur that will tell them where the abnormality is coming from. If you are clustering it will be great. It happened to me one time and I was grateful they were able to see it. They changed medications at that time for me.
MRI's indicating only a minor abnormality but nothing causing seizures until a few years ago. It is how thinly the slices of the MRI helps in the diagnosis. They found out the cause of my seizure disorder was during gestation.
I am on 3 medications to control my seizures. Exercise, sleep and eating a balance diet really helps anyone dealing w/ health issues. Stress brings on seizures but by exercising daily, sleeping and eating a balanced diet has helped me.
Each person has an individual cause. Now medications has them better under control. The doctor has to know your case a little bit. I have had seizures for a 40 years.
The EEGs can be normal and you can still be diagnosed as a seizure patient.
If you are monitored in a unit for a period of time and the discharges occur that will tell them where the abnormality is coming from. If you are clustering it will be great. It happened to me one time and I was grateful they were able to see it. They changed medications at that time for me.
MRI's indicating only a minor abnormality but nothing causing seizures until a few years ago. It is how thinly the slices of the MRI helps in the diagnosis. They found out the cause of my seizure disorder was during gestation.
I am on 3 medications to control my seizures. Exercise, sleep and eating a balance diet really helps anyone dealing w/ health issues. Stress brings on seizures but by exercising daily, sleeping and eating a balanced diet has helped me.
Each person has an individual cause. Now medications has them better under control. The doctor has to know your case a little bit. I have had seizures for a 40 years.