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Cluster Seizures

Mon, 02/21/2011 - 17:24

For the last 10 years my (undiaganosed) seizures have occurred only 4-6 times a year but when they do, I get a cluster of at least a dozen and more over the course of a 24hour period.

I saw a neuro for the first time last month (Jan/11) because I didn’t realize that I might be having seizures until I did a little Googling last summer (2010). I’m assuming they are simple partial seizures since I remain conscious and aware.

My neuro said that my description (see pkimmer story) was that of seizures but I forgot to ask what kind. I’m seeing her in a week (28Feb’11) to get her assessment now that MRI has come back normal like all of my other tests. Until then, can anyone shed some light on the SEIZURE CLUSTER aspect? The only thing I’ve found in my research pertains to tonic clonic or seizures complex partial seizures where consciousness is lost. Even then, they talk about a lot fewer seizures within a 24 hour time frame so I’m quite confused about it...ANYBODY??? Thanks for listening :  ) pkimmer



Comments

Re: Cluster Seizures

Submitted by tonialpha on Sat, 2011-03-05 - 11:05

My clusters I had two days ago was when I was fixing the dryer vent!

I pushed the dryer and the vent was not attached.  I was slightly confused but I knew I had to do something.  I suddenly got mad for no reason.  My daughter came in and noted I was having a seizure and handed me a vacuum cleaner and asked me if I was alright and I said I was fine.  It took me a minute or 2 to realize what I was suppose to do and then I could do it.

Normally it takes me 5-10 minutes to fix nozzle  the dryer but my daughter noted I was sitting on the floor staring at things and confused for a few minutes.  That night  my whole arm was sore and I went to bed.  That morning my husband noted I was having more little seizures and he handed me my emergency ativan and sent me to the ER.  The ER contacted my Epileptologist and she changed one of my medications.  My seizures were breaking thru not bad ... I personally wanted to go home.  I was worried I was having a stroke but they told me I had a bad seizure the day before and was a little disoriented.  Today I am just tired.  I haven't had this in a long time.    I felt embarrased. 

My clusters I had two days ago was when I was fixing the dryer vent!

I pushed the dryer and the vent was not attached.  I was slightly confused but I knew I had to do something.  I suddenly got mad for no reason.  My daughter came in and noted I was having a seizure and handed me a vacuum cleaner and asked me if I was alright and I said I was fine.  It took me a minute or 2 to realize what I was suppose to do and then I could do it.

Normally it takes me 5-10 minutes to fix nozzle  the dryer but my daughter noted I was sitting on the floor staring at things and confused for a few minutes.  That night  my whole arm was sore and I went to bed.  That morning my husband noted I was having more little seizures and he handed me my emergency ativan and sent me to the ER.  The ER contacted my Epileptologist and she changed one of my medications.  My seizures were breaking thru not bad ... I personally wanted to go home.  I was worried I was having a stroke but they told me I had a bad seizure the day before and was a little disoriented.  Today I am just tired.  I haven't had this in a long time.    I felt embarrased. 

Re: Cluster Seizures

Submitted by tcameron on Mon, 2011-02-21 - 23:24

I used to always have my seizures in clusters, when I had them.  I'd have three on the same day, then usually not another one for almost a year.  It was always in three's.  My neurologist prescribed Ativan for the clusters.  When taken after the first seizure, the cluster stopped.

I hope this info helps.

 

I used to always have my seizures in clusters, when I had them.  I'd have three on the same day, then usually not another one for almost a year.  It was always in three's.  My neurologist prescribed Ativan for the clusters.  When taken after the first seizure, the cluster stopped.

I hope this info helps.

 

Re: Cluster Seizures

Submitted by pkimmer on Tue, 2011-02-22 - 22:28

Hi tcameron,

Thank you for your response regarding cluster seizures. I googled Ativan to find out about its usage, side effects... it seems that it is prescribed mainly for anxiety. Do you find that your seizures are induced by anxiety? I have been unable to make any connection what-so-ever to any trigger for mine.

pkimmer

Hi tcameron,

Thank you for your response regarding cluster seizures. I googled Ativan to find out about its usage, side effects... it seems that it is prescribed mainly for anxiety. Do you find that your seizures are induced by anxiety? I have been unable to make any connection what-so-ever to any trigger for mine.

pkimmer

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