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Cluster Seizures

Mon, 02/21/2011 - 17:24

For the last 10 years my (undiaganosed) seizures have occurred only 4-6 times a year but when they do, I get a cluster of at least a dozen and more over the course of a 24hour period.

I saw a neuro for the first time last month (Jan/11) because I didn’t realize that I might be having seizures until I did a little Googling last summer (2010). I’m assuming they are simple partial seizures since I remain conscious and aware.

My neuro said that my description (see pkimmer story) was that of seizures but I forgot to ask what kind. I’m seeing her in a week (28Feb’11) to get her assessment now that MRI has come back normal like all of my other tests. Until then, can anyone shed some light on the SEIZURE CLUSTER aspect? The only thing I’ve found in my research pertains to tonic clonic or seizures complex partial seizures where consciousness is lost. Even then, they talk about a lot fewer seizures within a 24 hour time frame so I’m quite confused about it...ANYBODY??? Thanks for listening :  ) pkimmer



Comments

Re: Cluster Seizures

Submitted by pkimmer on Tue, 2011-02-22 - 22:18

Hi 3Hours2Live,

Thank you for your extensive response. You've given me some interesting information both from first hand experience and through your own search for theories that goes beyond the ABCs of epilepsy. I now feel I have new options, of which I was previously unaware, that I can further research. I was felt like I was just going in circles acquiring limited knowledge that didn't really deepen my understanding of the vast possibilies of what could be going on in my brain that just doesn't show up on any sort of test.

Thanks again for your insight.

pkimmer

Hi 3Hours2Live,

Thank you for your extensive response. You've given me some interesting information both from first hand experience and through your own search for theories that goes beyond the ABCs of epilepsy. I now feel I have new options, of which I was previously unaware, that I can further research. I was felt like I was just going in circles acquiring limited knowledge that didn't really deepen my understanding of the vast possibilies of what could be going on in my brain that just doesn't show up on any sort of test.

Thanks again for your insight.

pkimmer

Re: Cluster Seizures

Submitted by dstoller on Tue, 2011-06-14 - 22:52

Hello my name is Danielle.  Six months ago I was Dx w/ Complex Partial Seizures.  Only in the past two months have I had 3 occurences, today being the 3rd (6 to 7 CPS related seizures, some minutes apart from a few hours over a 24 hour per). I was curious how do you feel afterwards. I am not on any drugs at this time.  I actually had to seek another opinion, well in the process  I have tried two various drugs with no success or success but REALLY bad (adverse) reactions.  Am I at risk of developing actual tonic clonic seizures? Last question, how is this effecting my body if they are not continous.  I am sorry I am asking questions that can vary in answer considering the individual.  Until I see my new neurologist I am lost right now....especially after today's events.  Thank You!!!!!

Hello my name is Danielle.  Six months ago I was Dx w/ Complex Partial Seizures.  Only in the past two months have I had 3 occurences, today being the 3rd (6 to 7 CPS related seizures, some minutes apart from a few hours over a 24 hour per). I was curious how do you feel afterwards. I am not on any drugs at this time.  I actually had to seek another opinion, well in the process  I have tried two various drugs with no success or success but REALLY bad (adverse) reactions.  Am I at risk of developing actual tonic clonic seizures? Last question, how is this effecting my body if they are not continous.  I am sorry I am asking questions that can vary in answer considering the individual.  Until I see my new neurologist I am lost right now....especially after today's events.  Thank You!!!!!

Re: Cluster Seizures

Submitted by dstoller on Tue, 2011-06-14 - 22:54

Hello my name is Danielle.  Six months ago I was Dx w/ Complex Partial Seizures.  Only in the past two months have I had 3 occurences, today being the 3rd (6 to 7 CPS related seizures, some minutes apart from a few hours over a 24 hour per). I was curious how do you feel afterwards. I am not on any drugs at this time.  I actually had to seek another opinion, well in the process  I have tried two various drugs with no success or success but REALLY bad (adverse) reactions.  Am I at risk of developing actual tonic clonic seizures? Last question, how is this effecting my body if they are not continous.  I am sorry I am asking questions that can vary in answer considering the individual.  Until I see my new neurologist I am lost right now....especially after today's events.  Thank You!!!!!

Hello my name is Danielle.  Six months ago I was Dx w/ Complex Partial Seizures.  Only in the past two months have I had 3 occurences, today being the 3rd (6 to 7 CPS related seizures, some minutes apart from a few hours over a 24 hour per). I was curious how do you feel afterwards. I am not on any drugs at this time.  I actually had to seek another opinion, well in the process  I have tried two various drugs with no success or success but REALLY bad (adverse) reactions.  Am I at risk of developing actual tonic clonic seizures? Last question, how is this effecting my body if they are not continous.  I am sorry I am asking questions that can vary in answer considering the individual.  Until I see my new neurologist I am lost right now....especially after today's events.  Thank You!!!!!

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