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Nocturnal Seizures / Night seizures

Wed, 09/30/2009 - 19:45
Hello, My name is Danny I am 27 and have been dealing with seizures since 2004. Never before that date have i had one sigh of seizures. it has been one of the worst and hardest battles i have been dealing with also. one questions i have is that the seizures i have are weird, starting like this all the seizures i have had to this day were at night after i had woken up from sleeping, i would wake up have to pee and in a sweat which is weird.  also i have never had any during the day but i have had several grand mal seizures at night like i said. so if anyones has any ideas why this happens please let me know and hope all of you are doing better with your epilepsy.

Comments

Re: Nocturnal Seizures / Night seizures

Submitted by tonialpha on Fri, 2011-01-14 - 22:38

I noted about 7 years ago after I had my Vagal Nerve Stimulator battery replaced , I would wake up w/ a cloudy mind and headachy and confused.  I thought maybe I hit my head on the table next to the bed.  My husband tried to stop the movement in the bed and talk to me.  He realized I was having a seizure in bed while I was sleeping.  I talked to my Neurologist.  I was having them 2 -3 times a week.

 He did a sleep study and found out that my oxygenation levels drop during the night.  He told me to have a CPAP.  He also noted my wheezing too.  He thought this too could cause seizures too.

I was refered to a Pulmonologist and found out that my asthma had become worse for some reason since the change of VNS battery.

When the CPAP was worked w/ and I found the right medication for my asthma.  My seizures decreased.

I do have a seizure at night when I have a cold or respiratory problem but not as often.

I also started to fast walk again daily and my oxygen intake decreased my seizures at night and the day.  I was averaging 3-5 mi. a day.  I started off doing one block.  Now I walk all over the place!  I am healthier because of it.

My culprit is not getting enough rest and food during a 24 hr. period.

I noted about 7 years ago after I had my Vagal Nerve Stimulator battery replaced , I would wake up w/ a cloudy mind and headachy and confused.  I thought maybe I hit my head on the table next to the bed.  My husband tried to stop the movement in the bed and talk to me.  He realized I was having a seizure in bed while I was sleeping.  I talked to my Neurologist.  I was having them 2 -3 times a week.

 He did a sleep study and found out that my oxygenation levels drop during the night.  He told me to have a CPAP.  He also noted my wheezing too.  He thought this too could cause seizures too.

I was refered to a Pulmonologist and found out that my asthma had become worse for some reason since the change of VNS battery.

When the CPAP was worked w/ and I found the right medication for my asthma.  My seizures decreased.

I do have a seizure at night when I have a cold or respiratory problem but not as often.

I also started to fast walk again daily and my oxygen intake decreased my seizures at night and the day.  I was averaging 3-5 mi. a day.  I started off doing one block.  Now I walk all over the place!  I am healthier because of it.

My culprit is not getting enough rest and food during a 24 hr. period.

Re: Nocturnal Seizures / Night seizures

Submitted by coffeeclimber on Tue, 2011-02-22 - 00:31
DEFINITELY what I have. I was on klonopin but I kept waking up with auras which freak me out bcs I get some that turn into seizures...only around 2-4am. EVER. now i just started keppra...good luck. to us both!

Re: Nocturnal Seizures / Night seizures

Submitted by epoporad on Fri, 2011-12-30 - 21:00

I have had 3 night seizures in the last 3 months. I am 30 and have not had seizures since I was a kid...I have been on tegretol my whole life. I wake up to go to the bathroom, then fall and blackout after I go. I have been to the hospital twice with various injuries. (broken nose, bit tongue, chipped teeth, facial wounds) And have had several diagnosises. fainting or seizures. My new neurologist did a 24 eeg that came back abnormal with seizure activity at night. He believes I am definately having seizures.  I also feel that I am having them while I sleep and they jerk me awake.

He is in the process of switching me to lamictal...but just had another one last night:(

I am very confused. Does anyone else have symptoms like these?

-emily

I have had 3 night seizures in the last 3 months. I am 30 and have not had seizures since I was a kid...I have been on tegretol my whole life. I wake up to go to the bathroom, then fall and blackout after I go. I have been to the hospital twice with various injuries. (broken nose, bit tongue, chipped teeth, facial wounds) And have had several diagnosises. fainting or seizures. My new neurologist did a 24 eeg that came back abnormal with seizure activity at night. He believes I am definately having seizures.  I also feel that I am having them while I sleep and they jerk me awake.

He is in the process of switching me to lamictal...but just had another one last night:(

I am very confused. Does anyone else have symptoms like these?

-emily

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