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Does 11 febrile seizures under 2years old call for daily meds?
Fri, 01/28/2011 - 21:25Comments
Does 11 febrile seizures under 2years old call for daily meds?
Submitted by LolaSebMom on Sun, 2011-02-13 - 17:07
My daughter is 20 months and started having febrile seizures at 10 months. Her first two were 17 hours apart. She has had 5 total, with the last she needed medicine to break out of and lasted over 20 minutes. We have made some serious changes since then, no daycare - hired a nanny, the worst part is I am so afraid of letting her play with other kids except her older brother, who is almost 4 and has never had a seizure *fingers crossed*.
After the last seizure we talked to her neurologist about Keppra. If her seizures continue at the rate they have (all have been typical, under 4 minutes, except the last one) then we will seriously consider it. She recently had a normal EEG so we are waiting to see if the other changes we made will make a difference. Our neurologist thinks it might be worth it if they continue but the epilepsy doctor does not. It basically ocmes down to what the parent is comfortable with. The seizures are so emotionally draining that maybe they should be giving the parents valium instead of the kids (just kidding!)...
My daughter is 20 months and started having febrile seizures at 10 months. Her first two were 17 hours apart. She has had 5 total, with the last she needed medicine to break out of and lasted over 20 minutes. We have made some serious changes since then, no daycare - hired a nanny, the worst part is I am so afraid of letting her play with other kids except her older brother, who is almost 4 and has never had a seizure *fingers crossed*.
After the last seizure we talked to her neurologist about Keppra. If her seizures continue at the rate they have (all have been typical, under 4 minutes, except the last one) then we will seriously consider it. She recently had a normal EEG so we are waiting to see if the other changes we made will make a difference. Our neurologist thinks it might be worth it if they continue but the epilepsy doctor does not. It basically ocmes down to what the parent is comfortable with. The seizures are so emotionally draining that maybe they should be giving the parents valium instead of the kids (just kidding!)...
ReDoes 11 febrile seizures under 2years old call for daily meds?
Submitted by leya44 on Fri, 2011-02-04 - 20:54
Hi Jenai64,
You are not alone. I too have a 7 mth old who just had 2 febrile seizures in one day and 1 less than a month before those. She's had them due to high fever about 104 each time and UTI both times. So many doctors and nurses tell us that febrile seizure is benign and she will be okay, but watching her going through the seizures, is so far the worst scene I've witness as a mother. I feel alone too. I met only one person whose child had febrile seizure (her child is an adult now and doing well), but people that surrounds me (family and friends) none has kids who has experienced this. I really do not know how to accept this reality in my life. I know I have too as doctors are telling us that she is most likely to have more and slight risk of epilepsy in the future than kids who never had a seizure. Oh God I hope no more, but all we can do is pray. She also had an EEG this week and it came out normal. How long will it stay normal? I hope and pray forever. I wish you luck in your trials. Whether you are Christian or not, I will pray for you and your kids. Take Care and God Bless! Leya44
Hi Jenai64,
You are not alone. I too have a 7 mth old who just had 2 febrile seizures in one day and 1 less than a month before those. She's had them due to high fever about 104 each time and UTI both times. So many doctors and nurses tell us that febrile seizure is benign and she will be okay, but watching her going through the seizures, is so far the worst scene I've witness as a mother. I feel alone too. I met only one person whose child had febrile seizure (her child is an adult now and doing well), but people that surrounds me (family and friends) none has kids who has experienced this. I really do not know how to accept this reality in my life. I know I have too as doctors are telling us that she is most likely to have more and slight risk of epilepsy in the future than kids who never had a seizure. Oh God I hope no more, but all we can do is pray. She also had an EEG this week and it came out normal. How long will it stay normal? I hope and pray forever. I wish you luck in your trials. Whether you are Christian or not, I will pray for you and your kids. Take Care and God Bless! Leya44