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does anyone else suffer with epilepsy caused by pain? ....or is it just me?

Wed, 02/18/2009 - 20:51
I'm 24 and I have had epilepsy for about 5 years now. All my seizures have been pain related but ive never heard anybody else having them through pain! My 1st seizure happened after getting really bad stomach cramps and the 2nd was because i fell and banged my elbow. When i went to hospital for tests and explained to the doctor what caused the seizures he just looked at me funny as if i had made it all up. I have tried to research this but to no avail and i am starting to think i'm the only one. Everyone who asks me what causes my seizures always looks at me oddly when i say pain. I only have to stump my toe or trap my finger in something and im out cold. I just want to know if anyone else has the same pain related seizures so i can relate to them and not feel like an odd ball. I am on medication for this!!!

Comments

Re: does anyone else suffer w

Submitted by kiomy on Thu, 2011-02-03 - 15:31

Hi AV

 I'm Epileptic, I'm 24, Pain, stress, if I'm really hungry, if someone all of a sudden scares me, etc..........

Any of those things trigger my episodes. Pain can be exhausting on the body and exhaustion causes seizers 

Hi AV

 I'm Epileptic, I'm 24, Pain, stress, if I'm really hungry, if someone all of a sudden scares me, etc..........

Any of those things trigger my episodes. Pain can be exhausting on the body and exhaustion causes seizers 

Re:

Submitted by rdneckgrl16 on Sun, 2009-07-26 - 21:40
Hey! I was just curious, when you have a seizure what are they like?  Do your eyes fix do you shake or anything?  The reason I'm asking is b/c my husband is 23 years old and he has fell out twice since we've been married.  The 1st time he got up to use the restroom in the middle of the night and I heard a loud "boom" and I found him on the bathroom floor out cold.  He didn't come too until I touched him.  He wasn't shaking or anything. When he woke he was very very pale, disoriented and sick on his stomach.  They did a whole work up on him. ECG, MRI of the Brain and the doctor basically told him that he wasn't sure that there was no concrete evidence that he had a seizure but wanted him to take medication for it anyway.  Well my husband refused b/c he didn't want to take something if he wasn't sure if it would him him or not.  So probably about a year later this past Friday morning my husband is in the yard doing something in his work truck and goes to step out and twists his ankle.  I come out of the house heading to work and he's screaming in pain.  He is sitting down but when I look up to him again he's down on the ground out cold.  He was gray and his eyes were fixed. He didn't move or blink and im pretty sure he was not breathing.  I had to run to get my phone to call 911, I returned and again when I went to check for a pulse he woke up.  Now in the bathroom he fell from standing up, so that was a harder bump, but when he fell off that truck he had to hit the bumper of the truck before he halfway rolled under the bumper.   Im not sure if it is unrelated to the first time or not, but it just seems funny you know?  This time in the emergency room they didn't seem to care at all that he fell out.  And I told the ED doctor myself that he was gray and his eyes had been fixed.  I don't know what to do or what to think.

I am 18 and I have had 3

Submitted by ashezz92@yahoo.com on Mon, 2014-11-24 - 02:18
I am 18 and I have had 3 seizures uptill now, and all I can relate these three to is PAIN because I have these whenever I go for a blood test. 5 minutes after they take the needle out I have the seizures. So far I have encountered this website and this article on my condition:"Reflex anoxic seizures are paroxysmal, spontaneously-reversing brief episodes of asystole triggered by pain, fear or anxiety. Anoxic seizures are non-epileptic events caused by a reflex asystole due to increased vagal responsiveness. They are often misdiagnosed asepilepsy.[1]
  • During the episode, the child becomes suddenly pale and limp, will fall if standing, and loses consciousness.
  • This is followed by stiffening and clonic jerking of the limbs.
  • The episode is usually brief (30-60 seconds) and recovery is rapid.
  • There may also be upward eye deviation and urinary incontinence.
  • On recovery, the child may feel tired and washed-out for some time.
  • Reflex anoxic seizures do not cause tongue-biting and this may be useful in the differentiation from epilepsy.
I am just not sure about the last point because the latest seizure I had I bit my tongue pretty bad but from the sides because in epilepsy tip of the tongue is mostly bitten , maybe its because I fell I am not sure...................................................................................................................................................................................................................
  • Reflex anoxic seizures can usually be managed just with reassurance.[4] Drug treatment is rarely, if ever, needed.
  • During the episode, the child becomes suddenly pale and limp, will fall if standing, and loses consciousness.
  • This is followed by stiffening and clonic jerking of the limbs.
  • The episode is usually brief (30-60 seconds) and recovery is rapid.
  • There may also be upward eye deviation and urinary incontinence.
  • On recovery, the child may feel tired and washed-out for some time.
  • Reflex anoxic seizures do not cause tongue-biting and this may be useful in the differentiation from epilepsy.
I am just not sure about the last point because the latest seizure I had I bit my tongue pretty bad but from the sides because in epilepsy tip of the tongue is mostly bitten , maybe its because I fell I am not sure...................................................................................................................................................................................................................
  • Reflex anoxic seizures can usually be managed just with reassurance.[4] Drug treatment is rarely, if ever, needed.

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