My 16 year old daughters has be diaganosed with absent seizures in 4th grade, around 9 years old. Her neurologist said if she can be seizure free for two years, she will be taken off the meds. Well, many med changes later she was put on depakote. She's been on depakote for about 3 years now, 1500 mg per day. She is still having seizures and is sick of taking meds. She also developed polymyositis this year and is on a ton of other meds for that. She has gotten to the point many times that she just doesn't want to take any more pills and had hid them instead of taking them. After she misses a few days, she has a grand mal seizure from withdraw of the depakote. The neurologist we go to just keeps upping her dosage and keeps telling her two more years and this will be done. I do plan to seek a new neuologist since we are both frustrated with this. She never had a grand mal seizure before taking the depakote. When she stops taking the depakote, she is fine, no absent seizures for a few days until the level gets low and she has a grand mal. I've told her until I can't talk anymore you can not just stop taking that, it has to be slowly removed but being 16 she knows it all.
My question to you out there, is this normal? Has anyone else expirenced this? She used to be a great kid and since the meds has become, well, not a mother's dream child of any kind. I would love to take her off all meds but I want to do this safely. She's been going through this forever and enough is enough.