Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Can seizures be caused by birth control?

Fri, 02/22/2008 - 17:02

Now, I know some of you may think this is strange, but here goes:

I'm 21 and have had only 2 seizures in my life. One in April of last year and the other in August.  Both were after being on birth control (tri-cyclen lo, to be exact) for 3 months. I stopped taking my birth control after my seizure in April, but I didn't really think anything of it. I wasn't seeing anyone at the time so I just didn't really want it in my system. I started taking my birth control again in June after I met a new guy. After I had the seizure in August (late August) I started to think maybe it was caused by my birth control. The neurologist that was assigned to me said that it was entirely 100% impossible, but my family physician told me there was always a chance. 

I have been completely off my birth control since that last seizure and have not been taking any medications either. I feel a lot healthier and I haven't had a single problem since then, but the neurologist still will not listen to my input about why I think this happened.

I sat down with one of my girl friends that also has epilepsy and told her what was going on. She told me that the same thing happened to her when she started taking the pill but that none of the neurologists here believed her. She went to a husband and wife team in Quebec (way far away) and they told her that it was entirely possible that it was her birth control that caused it.

Anyways, has this happened to anyone else? 

Comments

Re: Can seizures be caused by birth control?

Submitted by gearyd on Thu, 2011-01-13 - 19:54
I have had similar situations! I had my first seizure 5yrs ago before I was on birth control, I then started Nuvaring and I went 4yrs on birth control and with out any seizure medication and i didnt not have ANY seizures or any feeling or ora like i was going to have one! I then took myself off birth control and with in 2weeks of being off i had my first seizure,I was off the Nuvaring for a year and i had 5 seizures in a year. Then i started to get acne, extremely emotional and i started to gain weight. I went to a my doctor and all my hormones where out of wack(which is why i was feeling that way) so i automatically put my self back on birth control and have felt like a million bucks ever since. i didnt even think of putting the two together until recently when i realized that everything in my life is coming back to normal, meaning that i started to feel so much better!!!My neurologist said that the birth control and hormen levels could POSSIBLY not definetly have something to trigger it! So until i decide to have children i am going to keep myself on birth control! my only concern is when i am ready to have children, whats going to happen when i take my self off birth control will i have seizures again! will it effect my having children! oo i was having the seizures off the birth control and on the seizure medication!!!

Re: Can seizures be caused by birth control?

Submitted by iluvpostitnotes on Sat, 2011-12-31 - 13:17
Yes! I took birth control for 9 years (between ages 15 and 23.) I had never experienced a seizure and I have no family history of Epilepsy. I had my first tonic-clonic seizure 3 MONTHS after getting off birth control. Considering I had no family history, I thought the birth control was the obvious cause. However, the doctor I had at the time disagreed and insisted that my E was hereditary. He told me that the only reason I had my first seizure after getting off the pill, was because my body was returning to its natural hormonal level. Basically, that the pill had kept my E under control and I didn't even know it. (I was on progesterone.) All my seizures occurred 1 - 5 days prior to my period, so the pill regulating my hormones had prevented me from having seizures. I got off the pill because I would forget to take it on time and would use condoms to prevent the possibility of getting pregnant, so I figured what's the point in spending the money on it. I totally regret making that decision, especially because I fear now that getting back on birth control would cause me to have seizures again. I've been seizure-free for 2 years now and I really want to keep it that way. But I plan on discussing birth control with both my neuro and gyno soon, even though I'm still apprehensive about the whole thing. I currently take 450 mg of Lamictal daily; brand necessary. Generic prescriptions can come from different manufacturers, and the most minute differences in dosages that result from buying from different manufacturers, can lead to seizures in some people. So, my doctor chose to avoid that possibility, and writes on all my Rx's "Brand Necessary". That way my insurance will cover the ridiculous cost of the pills. So, in my case, it wasn't that coming off birth control caused my E, it just revealed it. Which sucks. I haven't tried any creams or treatments other than taking my Lamictal, and for a little while, taking Keppra. I plan to ask about taking progesterone, since several women have noted that taking estrogen brought on more seizures.

Re: Can seizures be caused by birth control?

Submitted by Skyer on Thu, 2011-02-10 - 11:28
I'm very relieved to know that I'm not the only person who has gone through this. I was put on BC when I was 18 along with some vitamins and such. I thought I was doing fine on it, but it made me tired and my mom and friends noticed that for the month I was on it, I was pretty zombie-like. I finished the first month and felt a lot better and more like my self for the week I was off it between months. I started the second month, and the morning of my second day I woke up and as I was getting breakfast I had a seizure. I didn't go to the hospital, partly because when I had recovered and moved to the couch I didn't really feel like getting up or going anywhere. My mom took me off the BC and I haven't had a problem since. I tried to talk to my doctors about it and they didn't believe me about it, attributing it to other problems I've never had any symptoms of, and neither did my friends doctors when she went on BC recently and expressed concern about it happening to her. The only thing different in my life when I had the seizure was my BC, and I haven't had anything close to another episode since. So, I think doctors really need to get up on this stuff because obviously it's happening, whether it's attributed as a side effect or not.

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.