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Has anyone had brain surgery due to epilepsy?

Thu, 01/06/2011 - 11:28

May have brain surgery...Need advice!!!!

This is the first time I have ever used this website, so please forgive me if I miss something.  So, here's my story...I am 31 years old.  I was diagnosed with epilepsy in 2004.  I have had a few grand mal seizures (around 6 or 7), but I have a lot of petit mal seizures (complex partial) - over 60 in 2010.  This has greatly affected my life.  I totaled my car in 2010 because I had a seizure while driving.  Thank God no one was hurt, including myself.  Needless to say, I cannot drive right now.  I also has several seizures at work, which put a stress on things.  I have tried many medicines (not sure of spelling), including, Lamictal, Keppra, Carbatrol, and others.  I have tried name brand and generic.  My seizures have not gotten better.  My doc is now recommending brain surgery, as a lesion has been found in my front temporal lobe.  It is currently not a tumor, but could turn into one.  I have not taken the WADA yet, but it will be scheduled soon.  I would love to speak with anyone who has had brain surgery and the results he/she has had.  Thanks!

Comments

Re: Has anyone had brain surgery due to epilepsy?

Submitted by peytonwelch on Mon, 2011-01-10 - 14:52

Thanks for the reply.  I am having my Wada THIS THURSDAY - it was going to be today, but the weather is bad.  It's good to know your faith has been strong durinig this time.  I have found it easier to take life one day at a day instead of living in fear of the future.  When I live in fear (which is still most of the time right now) my life is simply not worth living.  However, i try to live by the serenity prayer, which is of great help.  Thanks for sharing what avm means. PW

Thanks for the reply.  I am having my Wada THIS THURSDAY - it was going to be today, but the weather is bad.  It's good to know your faith has been strong durinig this time.  I have found it easier to take life one day at a day instead of living in fear of the future.  When I live in fear (which is still most of the time right now) my life is simply not worth living.  However, i try to live by the serenity prayer, which is of great help.  Thanks for sharing what avm means. PW

Re: Has anyone had brain surgery due to epilepsy?

Submitted by tavi28 on Mon, 2011-01-10 - 19:24

I had Wada testing so long ago, I actually forgot what it was exactly like but I will keep you in my prayers for your testing on thursday.  It's good you don't live in fear.  There is one scripture I keep in mind.  I even used to write my scriptures on index cards because of having some issues remembering them (but GOD knows your'e heart).  I felt it in my spirit to give you this one.  Keep it close.  It is IITimothy 1:7 "For GOD has not given us the spirit of fear, but of power, love and a sound mind".  One day at a time is the direction to go.  I have been a christian my entire life but anger came upon me toward GOD after the brain injury.  I had become a hermit because I was living in fear (not wanting to embarrass myself and others) but GOD does not give fear to us.  And I'm not preaching to you.  I'm just litterally telling you what has kept me here.  HIM!  Fear had overtaken me, when I lost my job, ablility to drive, more seizures after brain surgeries but trust has remained.  So pray on things.  I'm so glad you got your wife.  I got my boyfriend and brother here with me.  No matter what doctors may tell you, trust GOD first and move in HIS direction.  I truly wish I would have prayed more before the brain surgeries.  That may have not been the direction HE wanted me to go, may have, but one thing I do know now, fear will not win!  grace and peace.  tavi28   

I had Wada testing so long ago, I actually forgot what it was exactly like but I will keep you in my prayers for your testing on thursday.  It's good you don't live in fear.  There is one scripture I keep in mind.  I even used to write my scriptures on index cards because of having some issues remembering them (but GOD knows your'e heart).  I felt it in my spirit to give you this one.  Keep it close.  It is IITimothy 1:7 "For GOD has not given us the spirit of fear, but of power, love and a sound mind".  One day at a time is the direction to go.  I have been a christian my entire life but anger came upon me toward GOD after the brain injury.  I had become a hermit because I was living in fear (not wanting to embarrass myself and others) but GOD does not give fear to us.  And I'm not preaching to you.  I'm just litterally telling you what has kept me here.  HIM!  Fear had overtaken me, when I lost my job, ablility to drive, more seizures after brain surgeries but trust has remained.  So pray on things.  I'm so glad you got your wife.  I got my boyfriend and brother here with me.  No matter what doctors may tell you, trust GOD first and move in HIS direction.  I truly wish I would have prayed more before the brain surgeries.  That may have not been the direction HE wanted me to go, may have, but one thing I do know now, fear will not win!  grace and peace.  tavi28   

Re: Has anyone had brain surgery due to epilepsy?

Submitted by peytonwelch on Tue, 2011-01-11 - 12:57

Thanks for the encouragement - and the scripture.  I will keep it as a reminder this week. And I do not feel like you are "preaching" to me.  I'm glad to know your heart and what helps you through your struggles.  It has not been an easy time for me.  It has only been through the power of prayer, love and encourement of my friends and family that I have made it this far.  My prayer for us all is that we do not live in fear, but walk in the assurance of our salvation and HIS love.  Way easier said that done (at least for me). Talk with ya soon.

Thanks for the encouragement - and the scripture.  I will keep it as a reminder this week. And I do not feel like you are "preaching" to me.  I'm glad to know your heart and what helps you through your struggles.  It has not been an easy time for me.  It has only been through the power of prayer, love and encourement of my friends and family that I have made it this far.  My prayer for us all is that we do not live in fear, but walk in the assurance of our salvation and HIS love.  Way easier said that done (at least for me). Talk with ya soon.

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