First seizure yesterday at 31 (in my sleep)

My story is similar, but I wasn't asleep. I was laying in bed next to my husband (who was napping), on my laptop, with the tv on and the fan on overhead (i have since learned the flickering is a trigger). I was 31 and taking Ultram, known to lower the seizure threshold. My husband and I had laughed when we read that side effect, strangely. Apparently I started seizing. I don't remember anything until I was fighting with an EMT who was trying to put an IV in. Went to the hospital, they did CT and maybe MR I. I told them I was on Ultram and that probably caused it. They agreed and sent me home. As it turned out, I probably had smaller seizures for years. About 7 months later I was extremely stressed,middle of the day, had just quit my job and was on phone with mother-in-law. I "cried out" and dropped the phone. She thought someone broke into the house. At some point I started to undress myself. I peed. My husband called and I answered the phone. I don't remember any of this. Sirens were coming, he could hear them. I called him "mom" and let him talk to the EMT. I started to come around and was terrified. Went to ER again. This time sent me to neuro. EEG showed nothing but symptoms were clearly epilepsy. Since then I've had EEGs that do show my foci. My epi has gotten much worse, mostly because of major stress. I'm refractory. But my case is unique because I went into status several times and that really messed up my brain pathways. Best of luck. Remember, one seizure does not mean you have epilepsy. But be vigilant. Tracy L. Karol http://www.TracyLKarol.com

My first seizure I had, also in my sleep, happened similar to yours. Although I did not pass out after the seizure. When I came to, I had a pounding headache in my forehead above my eyes, I was extremely nauseated, the side of my tongue was bitten, and my legs were weak and sore and I was confused. I was taken to the hospital in an ambulance. The EEG was normal, blood test (I don't know if they took one), was normal, the dr. did not say anything about anything. They said I had a seizure but they did not tell me why. They sent me home and I was fine. 2 months later, I had 2 more seizures, 2 hours apart in my sleep. I went to hospital again, and they gave me a liquid anti seizure medication, gave me Phenytoin (Dilantin) 3 times a day. 3 pills a day got to be too much meds. had to put it down to 2 times a day. That is still too much pills for me. I get sick when ever I eat food. The dr. never told me why I have seizures or if I have epilepsy. My fiance and I both think I have Nocturnal Seizure Disorder. It is a form of epilepsy and it is not very well understood. In this seizure type, people have seizures only when they are asleep. They have extreme headaches after seizure, extreme nausea, tongue bitten, legs weak and sore, and sometimes they can pee or poop their pants. EEG readings will be normal because the person is having the test done while they are awake. To really find out what seizure you have, you have to go to an epilepsy sleep center and have them stop your meds, and stress the hell out of you. The EEG will show what seizure you have then. Dr.'s have found out that each seizure has its own brain wave patterns. There are over 40 seizure disorders. Sorry for rambling. I hope you find out more about your seizure. Good luck!