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I'm new here - Lots of Complex Partials and deja vu several times per week...
Fri, 11/12/2010 - 05:22About Medial Temporal Lobe Epilepsy & Me
Based on my investigations and studies, I can say with almost 100% certainty that I’m suffering from Medial Temporal Lobe Epilepsy and have been now for around 12 years. I’m on 2000mg of Sodium Valproate and 50mg of Lamotragine perday. I think it’s controlling my gran mal seizures but nothing else.Déjà Vu
Before I go any further with this, I will be mentioning the words “déjà vu” many times throughout this piece and I’ll do my best to try and describe the initial feeling of it that I get...Simple Partial Seizures
I can relate to many aspects & symptoms of simple partial seizure when relative to MTLE. Mainly mnestic linked like:Complex Partial Seizures
Apparently these types of seizures impair consciousness to some extent, meaning altering the persons ability to interact with their surroundings. They usually begin with a simple partial seizure and then basically the simple partial seizure spreads to a larger portion of the temporal lobe. Apparently, signs may include, motionless staring, altered ability to respond, unusual speech or behaviours.Secondary Generalized Tonic-Clonic Seizures
These seizures are ones which begin in the temporal lobe and then spread to the whole brain. These generally begin with a simple partial or complex partial seizure but then the arms, legs etc stiffen in a flexed or extended position. This is followed by coarse jerking etc.Comments
Re: I'm new here - Lots of Complex Partials
Submitted by mcm on Wed, 2010-12-01 - 08:20
Wow can I relate to the SP and CP sections or what. Thanks for putting into words exactly how it feels for me.
I especially can relate to this part....
One minute I’m walking round the shop, the next minute I’m sitting with a Tesco staff member giving me a bottle of water in the back of the shop. What? This type of seizure will almost always leave me with an after-feeling of serious disappointment, a bit like a really bad unavoidable downer. I don’t know if the downer feeling is a result of, “oh for fucks sake, not again!!!” or if it’s just something in the brain that’s triggered automatically as a result of the seizure. It usually takes at least 20-30 minutes for the downer to start going away and I can get a bit emotional and inside I am generally full of rage at the shit card I’ve been dealt in life with this kind of rubbish.
Wow can I relate to the SP and CP sections or what. Thanks for putting into words exactly how it feels for me.
I especially can relate to this part....
One minute I’m walking round the shop, the next minute I’m sitting with a Tesco staff member giving me a bottle of water in the back of the shop. What? This type of seizure will almost always leave me with an after-feeling of serious disappointment, a bit like a really bad unavoidable downer. I don’t know if the downer feeling is a result of, “oh for fucks sake, not again!!!” or if it’s just something in the brain that’s triggered automatically as a result of the seizure. It usually takes at least 20-30 minutes for the downer to start going away and I can get a bit emotional and inside I am generally full of rage at the shit card I’ve been dealt in life with this kind of rubbish.
Thanks guys...
Submitted by jayemzs on Sat, 2010-12-04 - 09:22
Thanks guys for your comments, I am just glad there are other people out there who are on the same boat (I was going to call it a sinking ship but I guess I should be more positive). I've had this for 12 years now with no medication success but I went to see the professor last week and he told me there a loads of medicines etc still to try which sounded positive and he then proceeded to keep me on the same medication I've been on for 5 years. I was disappointed but I've to go back in January so fingers crossed.
I hope all you guys are doing well and keeping healthy.
Do any of you guys ever drink alcohol? I've only tried to have a drink a couple of times in the last year and every time after about 2 beers my stomach turns and it ends my night due to the high dosage I'm on daily.
Thanks guys for your comments, I am just glad there are other people out there who are on the same boat (I was going to call it a sinking ship but I guess I should be more positive). I've had this for 12 years now with no medication success but I went to see the professor last week and he told me there a loads of medicines etc still to try which sounded positive and he then proceeded to keep me on the same medication I've been on for 5 years. I was disappointed but I've to go back in January so fingers crossed.
I hope all you guys are doing well and keeping healthy.
Do any of you guys ever drink alcohol? I've only tried to have a drink a couple of times in the last year and every time after about 2 beers my stomach turns and it ends my night due to the high dosage I'm on daily.
Re: I'm new here -
Submitted by csaka on Tue, 2010-11-30 - 23:41
I'm new here too :) Nice to meet you, you are very organized and know yourself and your seizures well. Impressive! I'm with you on the *depression* after a tonic-clonic... after the bitten up cheek and weak body, that was the overall feeling that brought me to this site tonight. ;)