The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

Not coping well

Sat, 11/20/2010 - 03:26

 

Hey, I have just joined because of the reason that even after 3 years.. I have still not come to terms with having Temporal Lobe Epilepsy (after a brain virus).. All through school I kept it a secret except for my close friends, mainly because this other girl with epilepsy was really badly bullied - and my fits were not like hers at all. I have a complete memory wipe out, and I didnt want people to judge me or stereotype me.
I only ever had one fit in school, around my GCSES, and I sat in the corridor with my best friend and then a few seconds later my mind was wiped. I was crying, screaming, i didnt know where i was/who anyone was.
The next day people asked what happened, and I managed to just say i had a panic attack..

Well anyway, now im at college on a HEALTH care course.. and i thought people would 1.be more mature, and 2. these people wanna be nurses.. well i started getting left out of nights out, and i thought oh maybe they just dont like me.. not so bothered about that.. but then i found out its because they are scared im gonna have a fit and wreck their night They also said I am a liability. I have never had anybody say something so hurtful to me.

So im just generally fed up, I have never really accepted that I have epilepsy but I was dealing with it, yeh I did have my downdays but most of the time I was alright because I have great friends.. But these comments have totally made me at a all time low..

 I know I shouldnt listen, but it did really hurt, and now i dont want to tell ANYBODY anymore.. until i know them and trust them, but sometimes people do need to know despite that :\

 

I need cheering up and none of my friends understand what its like, and i dont expect them too. thats why i joined this website. xx

Comments

Re: Not coping well

Submitted by ChIbI nEkO on Mon, 2010-11-29 - 22:40

I understand how hard it is, I've had my seizures even in class and they all freaked out on me, but like some here said, your real friends will always be there for you, I know it's hard to deal with this, I've passed all this ever since I was a little girl, now I'm 21 and sometimes people still react in a bad way.  This is not something you shoud feel bad about and especially you should not hide it, let at least people close to you know about your condition, I told my friends even though at first I felt bad and embarrased about it, but it helps to let them know in case something would happen.  Talk and let know how you feel about all of this, they will understand. They always do.

Best of luck,

SV

I understand how hard it is, I've had my seizures even in class and they all freaked out on me, but like some here said, your real friends will always be there for you, I know it's hard to deal with this, I've passed all this ever since I was a little girl, now I'm 21 and sometimes people still react in a bad way.  This is not something you shoud feel bad about and especially you should not hide it, let at least people close to you know about your condition, I told my friends even though at first I felt bad and embarrased about it, but it helps to let them know in case something would happen.  Talk and let know how you feel about all of this, they will understand. They always do.

Best of luck,

SV

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.