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Cannot do anything I love to do

Sun, 10/24/2010 - 23:08
I am 17 and i live in California. I love to snowboard, ride dirt bikes, and hunt. When i was 14 my doctor told me i need to stay away from those activities because they could be dangerous if i had a seizure while doing them. After having a seizure while hunting and snowboarding i finally realized i need to listen to my doctor. I have not snowboarded, rode my dirt bike or hunted for over 2 years now and i also found out 1 year ago that i cannot drive until i go 6 months seizure free. It doesnt look like im going to be driving soon since im having anywhere from 3-5 complex partial seizures a day. I feel like im not a normal teenager and that everything i love to do has just been takin away from me for no reason. Does anyone have any advice or can anyone relate to what is happening to me?

Comments

Re: Cannot do anything I love to do

Submitted by Sophs64833 on Fri, 2010-11-12 - 13:20

Hey, I know exactly how you feel. My doctor said I can't drink alcohol though I do anyway, BUT with a friend I know and trust who knows what to do if I have a seizre. If my friend is not with me, I won't drink. I live in Singapore, I moved back here a few years ago but before that I was living 5 years in california and 5 years in wisconsin. Was diagnosed with epilepsy when I was in Wisconsin around age 10 or 11, something around that age. Over here in Singapore, it is illegal for me or anyone who has had a seizure to drive or even try driving. Over here, once you have had a seizure at no matter what age or after an accident or something, it is illegal to drive a vehicle or anything that has an engine....not even bumper cars at carnivals. I love skiing and when I was in wisconsin, I went skiing and cross country skiing, BUT with a group of friends who could look out for me in case I have a seizure. So I always have a friend around in case I have a seizure and I don't get lost somewhere in the trees and snow or something. When I was in my teens (i'm 22 now, still young!), I felt like i wasn't a normal teen too. So i know how you feel. And don't be surprised that when you aren't a teen anymore, you'l start feeling like you aren't a normal person. I know because I'm going through it. Sometimes after a seizure or when I think of being epileptic or people are talking to me about it or if people around me are doing things I can't because I'm epileptic...... I really feel abnormal and the "odd one out". I know how you feel, don't think too much about it. Know there are others like you who will support you! God bless!

 

~sophie

 you can contact me at sophilicioustan@gmail.com if you want support or something

 

Hey, I know exactly how you feel. My doctor said I can't drink alcohol though I do anyway, BUT with a friend I know and trust who knows what to do if I have a seizre. If my friend is not with me, I won't drink. I live in Singapore, I moved back here a few years ago but before that I was living 5 years in california and 5 years in wisconsin. Was diagnosed with epilepsy when I was in Wisconsin around age 10 or 11, something around that age. Over here in Singapore, it is illegal for me or anyone who has had a seizure to drive or even try driving. Over here, once you have had a seizure at no matter what age or after an accident or something, it is illegal to drive a vehicle or anything that has an engine....not even bumper cars at carnivals. I love skiing and when I was in wisconsin, I went skiing and cross country skiing, BUT with a group of friends who could look out for me in case I have a seizure. So I always have a friend around in case I have a seizure and I don't get lost somewhere in the trees and snow or something. When I was in my teens (i'm 22 now, still young!), I felt like i wasn't a normal teen too. So i know how you feel. And don't be surprised that when you aren't a teen anymore, you'l start feeling like you aren't a normal person. I know because I'm going through it. Sometimes after a seizure or when I think of being epileptic or people are talking to me about it or if people around me are doing things I can't because I'm epileptic...... I really feel abnormal and the "odd one out". I know how you feel, don't think too much about it. Know there are others like you who will support you! God bless!

 

~sophie

 you can contact me at sophilicioustan@gmail.com if you want support or something

 

Re: Cannot do anything I love to do

Submitted by ChIbI nEkO on Mon, 2010-11-29 - 22:46

I understand how you feel, it's hard to let go of things that you love to do, you have two choices in the matter

1- you can try your hobbies in a more moderate manner, that is, less time, however your having from 3-5 so it's better to try that when you are under more control

The best choice for you right now is to find other hobbies, I turned to find other things to entratain myself, I'm not supposed to: use the computer, watch TV, or play any video games, movies, especialy in 3D, can't drive, party, even though I'm not a party girl, but there are a lot of things, I still do some like the use of the computer but in a very limited ammount, only for assigments in college, however I found other things to do that resulted great and even relaxing which can help you a lot since sometimes even moods or strong emotions can trigger seizures.

I really hope you can search for alternatives that can benefit you ^_^

I understand how you feel, it's hard to let go of things that you love to do, you have two choices in the matter

1- you can try your hobbies in a more moderate manner, that is, less time, however your having from 3-5 so it's better to try that when you are under more control

The best choice for you right now is to find other hobbies, I turned to find other things to entratain myself, I'm not supposed to: use the computer, watch TV, or play any video games, movies, especialy in 3D, can't drive, party, even though I'm not a party girl, but there are a lot of things, I still do some like the use of the computer but in a very limited ammount, only for assigments in college, however I found other things to do that resulted great and even relaxing which can help you a lot since sometimes even moods or strong emotions can trigger seizures.

I really hope you can search for alternatives that can benefit you ^_^

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