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Keppra side effects

Sun, 11/07/2010 - 22:28

My 13 year old duaghter was diagnosed with Benign epilepsy in 2008 and not put on medication.  After getting a second opinion a year later she was diagnosed with complex-partial and built up to 3,250mg of Keppra every day.  She went through a lot of bad moodswings and anger for about a month and then it seemed to even out but after being on it for almost a year I have noticed that her side affects have increased and she is a very different person now with being much more withdrawn, tired, gained weight, depressed, moody, becoming angry in an instant and remaining angry for hours.  She used to be very happy, always apologizing quickly and had more energy.  She has also forgotten important events from the last 2-3 years which her Dr. says is from the seizures she had but I think it is a medication side effect.  She has also been having back aches almost every day.  Does anyone else have that who is on Keppra?  She never had more than 4 seizures a month and 95% were at night during her sleep.  They were all tonic-clonic seizures. 

I would really appreciate some input - PLEASE!!

Comments

Re: Keppra side effects

Submitted by Jsain6517 on Mon, 2010-11-08 - 12:02
My 11 yr old is also on Keppra, dealing with the same side effects. The school does not understand and has now labeled her a "bad kid". No matter what happens @ school, if the name Mercedes is mentioned she is blamed without a thought of investigation even though we have shown she is not always involved. So much so that when a boy punched her in the head Oct 4th, and put her into a seizure, the teacher ignored the altercation, waited for Mercedes to go to her after the seizure was over and "allowed" her to go to the clinic accompanied by another "student" while the boy/fight was never even addressed. I would love to see a day when pharmaceutical companies are able to develop a drug that can help with the seizures but also avoid these horrible side effects so everyone can have somewhat a normal life. Epileptics are labeled enough, they should not have to endure more issues just because of the medicine used to help control the seizures.

Re: Keppra side effects

Submitted by Laurie Dawn on Tue, 2010-11-09 - 13:09
I am so sorry to hear about your story.  It sounds like the staff at your daughters school needs some good education classes!!  I agree with you on the labeling - it has happened to my daughter also but not to that extent.  It is a very frustrating position to be in.  It seems the Dr.s dont really know more themselves and if the seizures are controlled, then the goal is accomplished.  But as I read on this website - the goal should also be to not have side effects.  I started my daughter on vitamin B6 today after reading some of my replies and I hope that might make a bit of improvement.  have you tried that?

Re: Keppra side effects

Submitted by smallsock on Tue, 2010-11-09 - 13:59

If I were you I would be filing charges with the police department against that boy.  And filing whatever charges against the school you can.  It is one thing to label a child, but you take it up a whole level higher when you allow my child's health to be compromised in class and do nothing about it.

I know sometimes people don't want to make a stink, but sometimes you have no choice.  I hope things get better for you.

If I were you I would be filing charges with the police department against that boy.  And filing whatever charges against the school you can.  It is one thing to label a child, but you take it up a whole level higher when you allow my child's health to be compromised in class and do nothing about it.

I know sometimes people don't want to make a stink, but sometimes you have no choice.  I hope things get better for you.

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