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Appointment. Confused.

Tue, 10/26/2010 - 19:22
Hi, I just want to keep the people up-dated.  So, I went to my appointment today, and the doctor thinks I have ADD.  I have 30 seizures a day, and, yes, some things of ADD do add up.  But Epilepsy just seems like the correct thing.  I don't know.  But I have two more EEG's to take, one this Thursday.  Need to get to the bottom of this.

Comments

Re: Appointment. Confused.

Submitted by trentonbest on Thu, 2010-10-28 - 13:19
I don't understand what 'the whole thing' is.  It's just because I don't think things through... like ever!  And I always get in trouble for it, and it's making me nuts!  Haha.  Part of NLD.  There are tons of symptoms of NLD.  Like thinking concretely.  I can't take a joke.  I take everything seriously.  Bad hand-writing.  Numbers of teachers have told me I need to take hand-writing classes.  But, obviously, I can't help that.  There's numbers of symptoms, and it would take me a LONG time to just type all of the symptoms.  But then to explain!  That's another story.  Haha!  What is TLE?  Oh, you mean Temporal Lobe Epilepsy.  I guess I have a new subject to obssess over. 

Re: Appointment. Confused.

Submitted by zealot on Thu, 2010-10-28 - 21:34

Trent,

Please don't obsess.  It's not worth the effort.  You really may not have epilepsy at all.  Your seizures could have many causes.

I can't read.  I thought you said NLE.  Why on earth would they be talking about ADHD if you are already diagnosed with NLD?  (Nonverbal Learning Disorder).  This makes no sense!

I don't know enough about NLD to know what kind of neurological complications can go along with it.  You may or may not have a seizure disorder on top of it.  It is very important that you have a neurologist who is familiar with NLD. 

Also, I am concerned about the fact that you never mention your parents.  You have only mentioned a brother.  I know relationships between parents and teens are difficult, but you never even mention their attitude to your learning disabilities and neurological difficulties.

Try running this google search by clickin the link:  http://www.google.com/search?hl=en&q=nonverbal+learning+%28disorder+%7C+disability%29

It will return sites having to do with your condition.  Most of them are geared to parents or are very scientific, but there might be some stuff you can understand.  Sometimes it's just good to know that there are other people out there like you.

TLE can have similar symptoms to NLD because of the same left-right hemisphere asymmetries it can cause.  I think that explains why we have so many similar imediments even though they are from very different causes.

Just make sure your neuro doesn't saddle you with a lot of extra diagnoses you don't need.

Please take good care of yourself and promise me you won't obsess.  It won't do you any good and might make it hard to sleep or concentrate on other things.  You don't want that.

The NLD certainly explains a lot of your difficulties. 

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

Trent,

Please don't obsess.  It's not worth the effort.  You really may not have epilepsy at all.  Your seizures could have many causes.

I can't read.  I thought you said NLE.  Why on earth would they be talking about ADHD if you are already diagnosed with NLD?  (Nonverbal Learning Disorder).  This makes no sense!

I don't know enough about NLD to know what kind of neurological complications can go along with it.  You may or may not have a seizure disorder on top of it.  It is very important that you have a neurologist who is familiar with NLD. 

Also, I am concerned about the fact that you never mention your parents.  You have only mentioned a brother.  I know relationships between parents and teens are difficult, but you never even mention their attitude to your learning disabilities and neurological difficulties.

Try running this google search by clickin the link:  http://www.google.com/search?hl=en&q=nonverbal+learning+%28disorder+%7C+disability%29

It will return sites having to do with your condition.  Most of them are geared to parents or are very scientific, but there might be some stuff you can understand.  Sometimes it's just good to know that there are other people out there like you.

TLE can have similar symptoms to NLD because of the same left-right hemisphere asymmetries it can cause.  I think that explains why we have so many similar imediments even though they are from very different causes.

Just make sure your neuro doesn't saddle you with a lot of extra diagnoses you don't need.

Please take good care of yourself and promise me you won't obsess.  It won't do you any good and might make it hard to sleep or concentrate on other things.  You don't want that.

The NLD certainly explains a lot of your difficulties. 

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

Re: Appointment. Confused.

Submitted by trentonbest on Fri, 2010-10-29 - 08:12
Oh, well I have a very good relationship with my parents, even though they are divorced.  I obssess because I LOVE medical terms, and it's so interesting looking things up.  My mom even told me to start obssessing about ADD, so that we can know the most about it.  Haha.  I like it though.  But if you think it will be dangerous academically then I will try not to obssess.  It's just what I'm known for!  Haha.  My parents....  They seem okay with my learning disabilities.  I think they do get frustrated when I can't understand what they are saying, for other nuerological disabilities I have.  But, they do want all of this controlled; that's normal.  So, I really am not quite sure if they are embarrassed, sad, or anything.  They shouldn't be embarrassed of it.  I just want to let you know that you are very smart, and you are very lucky for it.  Thanks for sharing your knowledge with me.

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