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EEG, and after.

Thu, 10/28/2010 - 11:30
Okay, so today I got my EEG.  I had no seizures when they were making the flashing lights, and no seizures during the hyperventilation.  This is supposed to make people provoked to have a seizure, especially what I got diagnosed with in 7th grade... Absence Seizures.  I had a couple of seizures going home though.  It makes me start to think that this is Complex Partial Seizures, especially after my freind Bruce suggested it.  This makes no sense at ALL.  Haha.  I have an appointment in November on the 29th.  I guess we'll find out in a month.  Just thought I would share this.

Comments

Re: EEG, and after.

Submitted by Masterjen on Thu, 2010-10-28 - 13:57
I find EEGs frustrating. I've had 2 out-patient ones (the typical 45 min recording sessions like you had); both were normal and I had no seizures during either of them. One of my doctors put so much weight on the EEG's being normal that he diagnosed "prrobable pseudoseizures". My current doctor, who unlike the last one actually listened to my explanations of what happens during a seizure, strongly disagreed with a pseudo. diagnosis, and started me on lamictal. This is the 3rd medication I've tried - the first doctor tried me on 2 different ones (also supporting a pseudo diagnosis, in his opinion). The second one said those medications weren't appropriate for the seizure types I have anyway! I have about 75% control over the seizures with lamictal, and I'm not even quite on the full dose.

Re: EEG, and after.

Submitted by trentonbest on Thu, 2010-10-28 - 14:53
Wow.  I'm sorry about that!  Did the medication make it worse?  How severe are your seizures?

Re: EEG, and after.

Submitted by Masterjen on Thu, 2010-10-28 - 15:39
The initial med. was dilantin IV (I was admitted to hospital because of status E about 2 weeks after I had my first seizure 5 months ago) then oral, but due to severe side effects including drug toxicity (!) I had to stop. I was then on clonazepam, which did not help at all, then clobazam which helped a bit. The lamictal I'm on now has helped tremendously. While in the early stages of tapering onto lamictal, I continued to have seizures (primarily partials that can - and most often do at night or in my sleep - secondarily generalize), so i was thinking (sarcastically): 'great, another one that doesn't work'. Now that I am 3/4 of the way through tapering onto lamictal, I am finally seeing about 80% seizure control. The big test will be at "that" time of the month (in about 2 1/2 weeks), when my seizures typically get really bad.

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