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Appointment. Confused.

Tue, 10/26/2010 - 19:22
Hi, I just want to keep the people up-dated.  So, I went to my appointment today, and the doctor thinks I have ADD.  I have 30 seizures a day, and, yes, some things of ADD do add up.  But Epilepsy just seems like the correct thing.  I don't know.  But I have two more EEG's to take, one this Thursday.  Need to get to the bottom of this.

Comments

Re: Appointment. Confused.

Submitted by trentonbest on Thu, 2010-10-28 - 08:15
Real Seizures?  Other than Epilepsy?  How do they sound any different?  Can you give details please?  I appreciate it.

Re: Appointment. Confused.

Submitted by zealot on Thu, 2010-10-28 - 10:22

Trent,

Pease read the information on this site.  In fact, go to the resources section and ask epi-help for help.  She does this for a living and I think she can give you good information.

The whole thing is very complicated and I think it is so complicated that the doctors don't even understand it, which is why they make so many mistakes.

People who don't have epilepsy are diagnosed with epilepsy and people who have epilepsy don't get diagnosed or worse, get diagnosed with things they don't have.  The result is that they get sicker.

You don't want this to happen, quite obviously.  This site has a lot of good information.  I don't agree with all of it, especially since this is a commercial site with vested interests.  Some of their information is biased, but it is a good place to start.

I can't spoon feed this stuff to you, nor should I.  I am not a doctor, though I started reading medical journals when I was 15.  I also know a lot of science.  My father was a well-known nuclear physicist.  His more recent work includes biophysics. 

My brother was a neurophysiologist and my uncle was a biochemist.  I picked all of their brains.  I learned a lot of this stuff at home.  The rest I learned by reading and talking to anyone I could find who knew stuff.

You must do the same.  Go to the library and get books.  Read what is on this site.

Are you having trouble understanding what you read or trouble putting stuff together?  There could be lots of things causing your difficulties.  Epilepsy may not be the answer.  If I were you, I would be praying for a condition that's easy to treat.

Things that can cause seizures:

  • Not enough sleep
  • Poor quality sleep (you keep waking up even if you don't remember it)
  • Low blood sugar (do you eat a lot of junk food?)
  • Medications
  • Medication withdrawal
  • Fever
  • Head trauma
  • Stress
  • Heart conditions
  • Aneurisms
  • Strokes
  • Etc....

It's a long list.  These things can all cause real seizures.  Fix them and the seizures go away!  If the seizures don't go away, it's possible that there's more than one thing wrong or that, say, you have a blood sugar problem and epilepsy.

Like I said, it's complicated and that's why so many mistakes are made.  Medicine is getting too complicated for most people to understand and doctors are people.  That's the problem.

Please take good care of yourself.  Please find out how to get the information on this site.  Ask epi-help.  I am sure she will be happy to answer your questions.

Baruch Hashem.  Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

Trent,

Pease read the information on this site.  In fact, go to the resources section and ask epi-help for help.  She does this for a living and I think she can give you good information.

The whole thing is very complicated and I think it is so complicated that the doctors don't even understand it, which is why they make so many mistakes.

People who don't have epilepsy are diagnosed with epilepsy and people who have epilepsy don't get diagnosed or worse, get diagnosed with things they don't have.  The result is that they get sicker.

You don't want this to happen, quite obviously.  This site has a lot of good information.  I don't agree with all of it, especially since this is a commercial site with vested interests.  Some of their information is biased, but it is a good place to start.

I can't spoon feed this stuff to you, nor should I.  I am not a doctor, though I started reading medical journals when I was 15.  I also know a lot of science.  My father was a well-known nuclear physicist.  His more recent work includes biophysics. 

My brother was a neurophysiologist and my uncle was a biochemist.  I picked all of their brains.  I learned a lot of this stuff at home.  The rest I learned by reading and talking to anyone I could find who knew stuff.

You must do the same.  Go to the library and get books.  Read what is on this site.

Are you having trouble understanding what you read or trouble putting stuff together?  There could be lots of things causing your difficulties.  Epilepsy may not be the answer.  If I were you, I would be praying for a condition that's easy to treat.

Things that can cause seizures:

  • Not enough sleep
  • Poor quality sleep (you keep waking up even if you don't remember it)
  • Low blood sugar (do you eat a lot of junk food?)
  • Medications
  • Medication withdrawal
  • Fever
  • Head trauma
  • Stress
  • Heart conditions
  • Aneurisms
  • Strokes
  • Etc....

It's a long list.  These things can all cause real seizures.  Fix them and the seizures go away!  If the seizures don't go away, it's possible that there's more than one thing wrong or that, say, you have a blood sugar problem and epilepsy.

Like I said, it's complicated and that's why so many mistakes are made.  Medicine is getting too complicated for most people to understand and doctors are people.  That's the problem.

Please take good care of yourself.  Please find out how to get the information on this site.  Ask epi-help.  I am sure she will be happy to answer your questions.

Baruch Hashem.  Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

Re: Appointment. Confused.

Submitted by trentonbest on Thu, 2010-10-28 - 10:45
I just have trouble putting it together, just because they said I had Absence Seizures.  Believe me or not, I have read a lot on this site.  Putting it together is hard.  Haha.  Thanks.  I know, you shouldn't be spoon feeding me, so I'm sorry I was forcing you to.

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