How to describe an aura.

Auras are very difficult to for me describe.  Unfortunately, many times the only person who knows what they are is the person who is having them.  Because auras are personal experiences, you might have one that nobody else would relate to and this might make you feel embarrassed to discuss.  I was embarrassed to tell anyone about mine for a very long time.  Discussing them with your doctor can help, because they can help you rule out other factors and help you deal with what they mean for you.  Auras can be good or bad sensations, they can make you feel very strange, and some can be frightening.  If you are familiar enough with your auras then you begin to know what they are associated with.  It sounds like you have already discovered yours.  I'm so glad that your tonic clonic does not always occur with an aura.  I have the same experience.  I also have different types of auras.  I have auras associated with migraines and auras associated with seizure activity.  My siezure-related auras sometimes bring about a falling sensation even though I may be perfectly still and appear normal in my balance and activity.  The falling sensation is that I am falling into my body, or folding into myself.  That does not fully describe the aura, but it's the closest explanation I can put into words.  I have had other auras, such as the sensation that I am "outside of myself" or other odd physical sensations.  Sometimes these sensations are grouped together and happen almost simultaneously, which can be very alarming. My experience has been that not many people want to describe auras because the explanations sound so off the wall.  I hope my words have been helpful to you in some way.  I wish you the best in controlling your seizures.