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Prison Abuse

Sun, 01/24/2010 - 11:58

This is a story of a staggering atrocity that a woman seeking help, wrote to me at my website.

Here is her story:

"My 24 year old son began having grand mal seizures about nine years ago. Until 5 and a half years ago they were very far apart, and his doctor's recommended not to medicate him, explaining that the seizures may disappear completely as he ages as mysteriously as they began.

Then something horrible happened. He was charged with a crime he did not commit (which although his attorney compiled evidence clearing him, he was frightened into taking a plea bargain for 10 years in prison the night before he was to enter the not guilty plea).

The problem with his epilepsy was that on the actual night of his arrest, the officers interrogating him (who did not like his answers because they did not fit their theory of the crime) forced him to stand up for 12 hours straight without food or water in hopes of 'cracking' him.

The result of this was that he fell into a grand mal seizure in which he did not breathe for 10 minutes, and received a concussion. Instead of getting medical help, he was tossed in a cell and left to recover on his own.

This was to change the severity and frequency of his seizures permanantly. It is also probably related to the prosecutor's ability to maniputate him into a plea bargain months later which would never have stood if the case had been heard by a judge or jury.

My son has already served over half of his sentence, and has been brought back to life dozens of times by prison EMTs. He has been on lethal doses of Tegretol, Dilantin, and now Dilantin and Lamictal (300 mg & 400 mg per day each, respectively). I never know if my phone conversations with him will be my last.

My question is this, when the current dosage levels of these drugs quit working, and they will, is there any other medication being tested now that would be worth the risks, and have they found any effective substances for epileptics that do not cause Steven's-Johnson Syndrome?

Right now my son's seizures come in 3's, and always deprive him of oxygen and often cause injuries that in themselves are life threatening. Can you give me info on where I can find out about cutting-edge research on S-J syndrome and medications, including human studies being conducted? Is there anything known that might help keep him from getting Steven's-Johnson?"

I gave her several links, a list of anti epilepsy drugs (anti-epileptic drugs) with their possible side-effects: http://www.webmd.com/epilepsy/medica...treat-seizures

I also included a site that helps give information for prisoners who suffer from epilepsy:
http://www.epilepsy.org.uk/sites/epi..._prisoners.pdf

And another website with a table of epilepsy drugs, brand names, average dose, treatment and possible side effects: http://www.epilepsysociety.org.uk/Ab...gsusedinadults

I also urged her to call her local State Representative and Congressman. Do you think she has any other recourse?

 

phylisfeinerjohnson

www.epilepsytalk.com 

Comments

Re: Prison Abuse

Submitted by phylisfjohnson on Mon, 2010-10-25 - 13:16

Arthur (my husband) and I brainstormed Friday night and that's just what I'm going to research next: Epilepsy Lawsuits...Hospital Epilepsy Malpractice...and Wrongful Death Suits.  Lawyers love to talk, so I figured I'd try to take that tack.

What do you think?     Phylis Feiner Johnson    www.epilepsytalk.com

 

Arthur (my husband) and I brainstormed Friday night and that's just what I'm going to research next: Epilepsy Lawsuits...Hospital Epilepsy Malpractice...and Wrongful Death Suits.  Lawyers love to talk, so I figured I'd try to take that tack.

What do you think?     Phylis Feiner Johnson    www.epilepsytalk.com

 

Re: Prison Abuse

Submitted by zealot on Mon, 2010-10-25 - 14:39

Phylis,

Excellent idea.  Lawyers do love to talk.  While I was working, I used to stop and have dinner at a local watering hole right across the street from the Kings County Court House.  The ex-parte communications were mind-boggling!

Once it's in court, unless a non-disclosure agreement is part of the settlement, it's fair game.  I actually was on a jury for a psych mal case of all things about 30 years ago.  It was different then.  You could get a case like that to court.  Now, no lawyer will take one.

I actually called the New York City Civil Liberties Union.  After asking me what my disability was (how illegal is that), they proceeded to discriminate against me on the basis of my disability!  I am one of many epileptics saddled with a psych dx and I can't get my disability changed from psych to epilepsy without a good neurologist.

If I ever was bipolar, I am now in full remission because of mother nature's ECT.  My brains are too fried to be bi-polar.  They've tried to turn me into a paranoid schizophrenic, but you can't make a sow's ear out of a silk purse.  These "doctors" are delusional.

Maybe I'll try wriing to ProPublica again.  Your idea is a good one.  Maybe they can tell you what's going on with HIPAA and the RHIOs and all.  I think that's a big part of this.

Thanks,

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

P.S.  Everyone:  Links to my latest posts including pictures of my auras are here http://my.epilepsy.com/node/992444#comment-1038449

 

Phylis,

Excellent idea.  Lawyers do love to talk.  While I was working, I used to stop and have dinner at a local watering hole right across the street from the Kings County Court House.  The ex-parte communications were mind-boggling!

Once it's in court, unless a non-disclosure agreement is part of the settlement, it's fair game.  I actually was on a jury for a psych mal case of all things about 30 years ago.  It was different then.  You could get a case like that to court.  Now, no lawyer will take one.

I actually called the New York City Civil Liberties Union.  After asking me what my disability was (how illegal is that), they proceeded to discriminate against me on the basis of my disability!  I am one of many epileptics saddled with a psych dx and I can't get my disability changed from psych to epilepsy without a good neurologist.

If I ever was bipolar, I am now in full remission because of mother nature's ECT.  My brains are too fried to be bi-polar.  They've tried to turn me into a paranoid schizophrenic, but you can't make a sow's ear out of a silk purse.  These "doctors" are delusional.

Maybe I'll try wriing to ProPublica again.  Your idea is a good one.  Maybe they can tell you what's going on with HIPAA and the RHIOs and all.  I think that's a big part of this.

Thanks,

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

P.S.  Everyone:  Links to my latest posts including pictures of my auras are here http://my.epilepsy.com/node/992444#comment-1038449

 

Re: Prison Abuse

Submitted by zealot on Mon, 2010-10-25 - 15:22

Phylis,

Look at this list:

  • Warren Lammert: Chairman & Co-Founder; Founder, Granite Point Capital
  • Karen L. Bergman: Founder and Principal, BCC Partners
  • Joyce Cramer: President; Associate Research Scientist, Yale University School of Medicine
  • Orrin Devinsky, M.D.: Co-Founder; Vice President for Translational Programs; Scientific Advisory Board; Professor of Neurology, Neurosurgery and Psychiatry and Director, NYU Comprehensive Epilepsy Center, New York University
  • Frank Fischer: President & CEO, NeuroPace, Inc.
  • Jacqueline French, M.D.: Vice President for Clinical Research; Chair, Scientific Advisory Board; Professor of Neurology, NYU Comprehensive Epilepsy Center, New York University; Director of the Epilepsy Study Consortium
  • May Liang: General Counsel and Chief Financial Officer for Open-Concept Systems, Inc.
  • Kevin Malone: President and Founder, Greenrock Research
  • Garry E. Menzel, Ph.D.: Chair, Business Advisory Board, Executive Vice President Corporate Development and Finance, Regulus Therapeutics
  • David A. Sadock: President & CEO, Ethos Health Communications
  • Nancy Santilli, B.S.N., M.S.N.: VP Commercial Strategy and Portfoloio Planning, Endo Pharmaceuticals, Inc.
  • Howard Soule, Ph.D.:  Executive Vice President and Chief Science Officer, Prostate Cancer Foundation; Senior Fellow, Milken Institute
  • Linda Warner: Relocation Specialist, Coldwell Banker Burnet
  • Kim Macher: (ex officio) Executive Director, Epilepsy Therapy Project

Continue to: Scientific Advisory Board

This is also a huge part of the problem.  Look at who these people are, their affiliations, and what their financial interests are.  Therein lies the crux of the problem.

Baruch Hashem.  Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

P.S.  Is this why nyu-epi is still allowed to troll this site directly soliciting bodies for research projects?

P.P.S.  This post is triggering the captcha gotcha!

Phylis,

Look at this list:

  • Warren Lammert: Chairman & Co-Founder; Founder, Granite Point Capital
  • Karen L. Bergman: Founder and Principal, BCC Partners
  • Joyce Cramer: President; Associate Research Scientist, Yale University School of Medicine
  • Orrin Devinsky, M.D.: Co-Founder; Vice President for Translational Programs; Scientific Advisory Board; Professor of Neurology, Neurosurgery and Psychiatry and Director, NYU Comprehensive Epilepsy Center, New York University
  • Frank Fischer: President & CEO, NeuroPace, Inc.
  • Jacqueline French, M.D.: Vice President for Clinical Research; Chair, Scientific Advisory Board; Professor of Neurology, NYU Comprehensive Epilepsy Center, New York University; Director of the Epilepsy Study Consortium
  • May Liang: General Counsel and Chief Financial Officer for Open-Concept Systems, Inc.
  • Kevin Malone: President and Founder, Greenrock Research
  • Garry E. Menzel, Ph.D.: Chair, Business Advisory Board, Executive Vice President Corporate Development and Finance, Regulus Therapeutics
  • David A. Sadock: President & CEO, Ethos Health Communications
  • Nancy Santilli, B.S.N., M.S.N.: VP Commercial Strategy and Portfoloio Planning, Endo Pharmaceuticals, Inc.
  • Howard Soule, Ph.D.:  Executive Vice President and Chief Science Officer, Prostate Cancer Foundation; Senior Fellow, Milken Institute
  • Linda Warner: Relocation Specialist, Coldwell Banker Burnet
  • Kim Macher: (ex officio) Executive Director, Epilepsy Therapy Project

Continue to: Scientific Advisory Board

This is also a huge part of the problem.  Look at who these people are, their affiliations, and what their financial interests are.  Therein lies the crux of the problem.

Baruch Hashem.  Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

P.S.  Is this why nyu-epi is still allowed to troll this site directly soliciting bodies for research projects?

P.P.S.  This post is triggering the captcha gotcha!

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