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Cannot do anything I love to do

Sun, 10/24/2010 - 23:08
I am 17 and i live in California. I love to snowboard, ride dirt bikes, and hunt. When i was 14 my doctor told me i need to stay away from those activities because they could be dangerous if i had a seizure while doing them. After having a seizure while hunting and snowboarding i finally realized i need to listen to my doctor. I have not snowboarded, rode my dirt bike or hunted for over 2 years now and i also found out 1 year ago that i cannot drive until i go 6 months seizure free. It doesnt look like im going to be driving soon since im having anywhere from 3-5 complex partial seizures a day. I feel like im not a normal teenager and that everything i love to do has just been takin away from me for no reason. Does anyone have any advice or can anyone relate to what is happening to me?

Comments

Re: Cannot do anything I love to do

Submitted by phylisfjohnson on Mon, 2010-10-25 - 09:07

Yes, I can relate.  When I was a teenager, I couldn't do any athletic stuff -- I even drove my bike into a tree!  And dating was a disaster.  (It was the ancient days of the disco era.)

But there's a cool helmet you might want to look into.  It's called a "Humpty Hat" (an unfortunate name).  It's got  XLPE 1900 foam poly shields which protect:

Occipital area (back of head)
Parietal area (top of the head)
Frontal area (forehead)

I don't know if it's for you, but you can take a look at http://www.humptyhat.com/science.html

GOOD LUCK!!!     Phylis Feiner Johnson    www.epilepsytalk.com

 

Yes, I can relate.  When I was a teenager, I couldn't do any athletic stuff -- I even drove my bike into a tree!  And dating was a disaster.  (It was the ancient days of the disco era.)

But there's a cool helmet you might want to look into.  It's called a "Humpty Hat" (an unfortunate name).  It's got  XLPE 1900 foam poly shields which protect:

Occipital area (back of head)
Parietal area (top of the head)
Frontal area (forehead)

I don't know if it's for you, but you can take a look at http://www.humptyhat.com/science.html

GOOD LUCK!!!     Phylis Feiner Johnson    www.epilepsytalk.com

 

Re: Cannot do anything I love to do

Submitted by smallsock on Mon, 2010-10-25 - 09:30

And this proves the point I have been trying to make!

 Why didn't the doctor tell him about the helmet, rather than just giving him a list of can'ts? I think it is unfortunate to take away the activities a person loves and not put anything in their place.

Maybe he can talk to his doctor and find out if there is a way he can do these activities safely.  But of course, we all have to make changes because of health conditions

And this proves the point I have been trying to make!

 Why didn't the doctor tell him about the helmet, rather than just giving him a list of can'ts? I think it is unfortunate to take away the activities a person loves and not put anything in their place.

Maybe he can talk to his doctor and find out if there is a way he can do these activities safely.  But of course, we all have to make changes because of health conditions

Re: Cannot do anything I love to do

Submitted by trentonbest on Mon, 2010-10-25 - 17:58

Hi there, I do not have Complex Partial Seizures, but I do have Absence Seizures.  I am only 14, and going to be 15 in Janurary so I know what you're going through.  When my parents talk about giving a car to my brother and I, their car, they always say my brother's name, or have recently said that.  I do not feel like a normal teenager either, because my life is made complicated by this thing we call Epilepsy.  So many people are out there who have them, so don't feel alone.  We're all in this together.  I have to say though, how many Complex Partial Seizures you have is not too normal.  Usually you only have about one or possibly two.  But 3-5?  I'm sorry you feel this way, and I guess I should feel sorry for myself too, since I feel the same way.  Don't worry.

Hi there, I do not have Complex Partial Seizures, but I do have Absence Seizures.  I am only 14, and going to be 15 in Janurary so I know what you're going through.  When my parents talk about giving a car to my brother and I, their car, they always say my brother's name, or have recently said that.  I do not feel like a normal teenager either, because my life is made complicated by this thing we call Epilepsy.  So many people are out there who have them, so don't feel alone.  We're all in this together.  I have to say though, how many Complex Partial Seizures you have is not too normal.  Usually you only have about one or possibly two.  But 3-5?  I'm sorry you feel this way, and I guess I should feel sorry for myself too, since I feel the same way.  Don't worry.

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