Prison Abuse

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This is a story of a staggering atrocity that a woman seeking help, wrote to me at my website.

Here is her story:

"My 24 year old son began having grand mal seizures about nine years ago. Until 5 and a half years ago they were very far apart, and his doctor's recommended not to medicate him, explaining that the seizures may disappear completely as he ages as mysteriously as they began.

Then something horrible happened. He was charged with a crime he did not commit (which although his attorney compiled evidence clearing him, he was frightened into taking a plea bargain for 10 years in prison the night before he was to enter the not guilty plea).

The problem with his epilepsy was that on the actual night of his arrest, the officers interrogating him (who did not like his answers because they did not fit their theory of the crime) forced him to stand up for 12 hours straight without food or water in hopes of 'cracking' him.

The result of this was that he fell into a grand mal seizure in which he did not breathe for 10 minutes, and received a concussion. Instead of getting medical help, he was tossed in a cell and left to recover on his own.

This was to change the severity and frequency of his seizures permanantly. It is also probably related to the prosecutor's ability to maniputate him into a plea bargain months later which would never have stood if the case had been heard by a judge or jury.

My son has already served over half of his sentence, and has been brought back to life dozens of times by prison EMTs. He has been on lethal doses of Tegretol, Dilantin, and now Dilantin and Lamictal (300 mg & 400 mg per day each, respectively). I never know if my phone conversations with him will be my last.

My question is this, when the current dosage levels of these drugs quit working, and they will, is there any other medication being tested now that would be worth the risks, and have they found any effective substances for epileptics that do not cause Steven's-Johnson Syndrome?

Right now my son's seizures come in 3's, and always deprive him of oxygen and often cause injuries that in themselves are life threatening. Can you give me info on where I can find out about cutting-edge research on S-J syndrome and medications, including human studies being conducted? Is there anything known that might help keep him from getting Steven's-Johnson?"

I gave her several links, a list of anti epilepsy drugs (anti-epileptic drugs) with their possible side-effects: http://www.webmd.com/epilepsy/medica...treat-seizures

I also included a site that helps give information for prisoners who suffer from epilepsy:
http://www.epilepsy.org.uk/sites/epi..._prisoners.pdf

And another website with a table of epilepsy drugs, brand names, average dose, treatment and possible side effects: http://www.epilepsysociety.org.uk/Ab...gsusedinadults

I also urged her to call her local State Representative and Congressman. Do you think she has any other recourse?

phylisfeinerjohnson

www.epilepsytalk.com

Comments

Re: Prison Abuse

Submitted by zealot on Sat, 2010-10-23 - 13:55

Phylis,

Thank you. Sunshine is the only cure.

I don't think you have much free time, but I believe that some how you will make some.

The more voices, the greater the chance that something will be done.

My blog is somewhat disorganised because of the increasing severity of my impediments due to my increasing seizure rate. I pray that you read it and find stuff you can use in there because I have put together a lot of things. I just somehow can't quite tie it all together. I'll get there if I live long enough.

Baruch Hashem. Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

P.S. Here are links to my two latest posts:

Epilepsy Carpe Diem: Images of Auras of Temporal Lobe Epilepsy

http://psychout.typepad.com/blog/2010/10/wikipedia_nys_law_enforcement_www_omh_state_ny_us_www_nj_humanservices_dmhs_us_gov_jfsatlantic_jewish_federation_atlantic_pol.html

Epilepsy Carpe Diem: Images of New York State Police Cars and Google Searches

http://psychout.typepad.com/blog/2010/10/epilepsy-carpe-diem-images-of-auras-of-temporal-lobe-epilepsy.html

There's more to them than meets the eye. I'm having trouble writing and putting stuff together so I have to do it this way. Sometimes the shortest distance between two points isn't a two-dimensional line.

Phylis,

Thank you. Sunshine is the only cure.

I don't think you have much free time, but I believe that some how you will make some.

The more voices, the greater the chance that something will be done.

My blog is somewhat disorganised because of the increasing severity of my impediments due to my increasing seizure rate. I pray that you read it and find stuff you can use in there because I have put together a lot of things. I just somehow can't quite tie it all together. I'll get there if I live long enough.

Baruch Hashem. Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

P.S. Here are links to my two latest posts:

Epilepsy Carpe Diem: Images of Auras of Temporal Lobe Epilepsy

http://psychout.typepad.com/blog/2010/10/wikipedia_nys_law_enforcement_www_omh_state_ny_us_www_nj_humanservices_dmhs_us_gov_jfsatlantic_jewish_federation_atlantic_pol.html

Epilepsy Carpe Diem: Images of New York State Police Cars and Google Searches

http://psychout.typepad.com/blog/2010/10/epilepsy-carpe-diem-images-of-auras-of-temporal-lobe-epilepsy.html

There's more to them than meets the eye. I'm having trouble writing and putting stuff together so I have to do it this way. Sometimes the shortest distance between two points isn't a two-dimensional line.

Re: Prison Abuse

Submitted by phylisfjohnson on Sat, 2010-10-23 - 17:34

Well folks, I've been researching hospital abuse since I last signed off. Not too many stories published. (I wonder why!) Remember, the article above was taken from a letter that the mom sent to me.

So I'm going to keep snooping for "live" stories and then go on to the private stories, too horrific to believe.

Any other ideas? Phylis Feiner Johnson www.epilepsytalk.com

Well folks, I've been researching hospital abuse since I last signed off. Not too many stories published. (I wonder why!) Remember, the article above was taken from a letter that the mom sent to me.

So I'm going to keep snooping for "live" stories and then go on to the private stories, too horrific to believe.

Any other ideas? Phylis Feiner Johnson www.epilepsytalk.com

Re: Prison Abuse

Submitted by zealot on Sat, 2010-10-23 - 18:26

Phylis,

There is a link I got past the slam spam censor before they choked it down some more. Tadzio also posted some good links on a comment to my blog that he couldn't get through the censor here.

Here is the link to my comment with the link to the Harborview Horror: http://my.epilepsy.com/node/992026#comment-1038217

Here is the link to my blog post with Tadzio's unexpurgated comment: http://psychout.typepad.com/blog/2010/10/new-york-state-office-of-mental-health-police-google-search-omh-safety-van-harlem-photo-car-image.html

Yeah, I wonder why too (not). Hospitals use HIPAA as a shield law to protect themselves, not patients. I've read the statute. They can forward whatever they like whenever they like without your prior knowlege or consent. You have the right to view your HIPAA referral packet and submit a written addendum to be attached permanenty to it.

The only time I was able to accomplish this on a one-time basis was when I added a stipulation to the consent form I signed for my HRA housing application that the consent was conditional based on my being allowed to attach the addendum as per my Federal HIPAA rights. They (the New York State Office of Mental Health) had no choice but to comply.

It did me no good because they basically sabotaged the application. It was wrong from where I was born to my current address! Just about everything in between as well. I really need to write that letter to the New York State Inspector General's Office, but the specifics of traumatic experiences are too difficult to write.

The only time I can write somewhat fluently is when I am "conversing" with someone as I am now. Sitting and writing a documentary statement is beyond my capabilities right now. I am really in a bind.

Thanks for the interest. Maybe you can look at some of the searches in my blog and see what they turn up. My Favorite Searches at the bottom of the left hand column of the blog has links to searches. Some of the posts do too. The link to the Harborview Horror popped in one of my searches so I put it in the blog.

You have to be really creative with search queries to find what you need. The internet is most definitely censored. You wouldn't believe some of the stuff I've seen. Some of it is in the blog. It can get pretty tech geek, but the censorship is one of the major themes of the blog.

I had first page Google search rankings and my caches have been trashed so I've slipped. I'll get back up there, but I'm too sick to launch an all out blitz. I do know how.

Feel free to comment on my blog posts. I can also freely reply to you there and not worry about links being censored as "spam." We can't even talk about fr-- movies anymore on this site. The weather' kinda cold to sit in the park and watch them now anyway.

The headline stuff is usually wrongful death suits. No one cares unless they can make money from it. I watched with my own eyes as hospital staff stepped over a woman who was prostrate on the floor as if she were a piece of garbage they didn't want stuck to their shoes in Woodhull Hospital in Bed-Stuy Brooklyn where I used to live. I walked out of the ER. I figured no one was watching. I was right.

I call it Hellhole Hospital. The natives call it Deathhole hospital. The Police and EMTs call it Woodkill Hospital. Same diff.

You know what their excuse was? "She's just an alcolholic!" She's just a cash cow.

They have a 133 bed psych unit, a 29 bed drug detox unit, and a 29 bed alcohol detox unit. "Oh, she keeps coming back to dry out so she can have a cheaper habit." No, she keeps coming back because she wants help and you're not giving her what she needs. And you're taking money to abuse her.

I hope you took a look at my new posts. Thanks again.

Baruch Hashem. Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

P.S. If you want horror stories, maybe you can listen to mine. I have the goods to back it up. I can document abuse involving Class II Controlled Substances. I don't think those med records can be tamplered with. I have seen evidence of electronic chart tampering and went to the Kings County District Attorney's Office about it. I think that may be part of the reason "they kept putting me away."

The hospital involved uses a vendor supplied system and the vendors keep audit trails to protect themselves. I have tried to follow through on this stuff, but I keep getting sick (physically) and then I kept getting quite illegally thrown in the bin.

In New York State you need a Two Physician Certificate. I spent 77 days in the Hospital on a 2PC signed by a Nurse Practicioner who cannot do so who claimed I was suicidal when I was not and said so. There had been a fire in my apartment so I needed to go to the one Hospital in NYC that had my meds. The Red Cross ratted me out and then I couldn't leave the borough to go to Manhattan to the Hospital that had my medication.

The Red Cross are another story. I don't know anyone they helped, but I know a lot of people they screwed.

I've got much more. I just can't fill out forms and coming up with the specifics gives me headaches. I really need help.

Phylis, There is a link I got past the slam spam censor before they choked it down some more.  Tadzio also posted some good links on a comment to my blog that he couldn't get through the censor here. Here is the link to my comment with the link to the Harborview Horror:  <a href="/node/992026#comment-1038217">http://my.epilepsy.com/node/992026#comment-1038217</a> Here is the link to my blog post with Tadzio's unexpurgated comment:  <a href="http://psychout.typepad.com/blog/2010/10/new-york-state-office-of-mental-health-police-google-search-omh-safety-van-harlem-photo-car-image.html">http://psychout.typepad.com/blog/2010/10/new-york-state-office-of-mental-health-police-google-search-omh-safety-van-harlem-photo-car-image.html</a> Yeah, I wonder why too (not).  Hospitals use HIPAA as a shield law to protect themselves, not patients.  I've read the statute.  They can forward whatever they like whenever they like without your prior knowlege or consent.  You have the right to view your HIPAA referral packet and submit a written addendum to be attached permanenty to it. The only time I was able to accomplish this on a one-time basis was when I added a stipulation to the consent form I signed for my HRA housing application that the consent was conditional based on my being allowed to attach the addendum as per my Federal HIPAA rights.  They (the New York State Office of Mental Health) had no choice but to comply. It did me no good because they basically sabotaged the application.  It was wrong from where I was born to my current address!  Just about everything in between as well.  I really need to write that letter to the New York State Inspector General's Office, but the specifics of traumatic experiences are too difficult to write. The only time I can write somewhat fluently is when I am "conversing" with someone as I am now.  Sitting and writing a documentary statement is beyond my capabilities right now.  I am really in a bind. Thanks for the interest.  Maybe you can look at some of the searches in my blog and see what they turn up.  My Favorite Searches at the bottom of the left hand column of the blog has links to searches.  Some of the posts do too.  The link to the Harborview Horror popped in one of my searches so I put it in the blog. You have to be really creative with search queries to find what you need.  The internet is most definitely censored.  You wouldn't believe some of the stuff I've seen.  Some of it is in the blog.  It can get pretty tech geek, but the censorship is one of the major themes of the blog.   I had first page Google search rankings and my caches have been trashed so I've slipped.  I'll get back up there, but I'm too sick to launch an all out blitz.   I do know how. Feel free to comment on my blog posts.  I can also freely reply to you there and not worry about links being censored as "spam."  We can't even talk about fr-- movies anymore on this site.  The weather' kinda cold to sit in the park and watch them now anyway. The headline stuff is usually wrongful death suits.  No one cares unless they can make money from it.  I watched with my own eyes as hospital staff stepped over a woman who was prostrate on the floor as if she were a piece of garbage they didn't want stuck to their shoes in Woodhull Hospital in Bed-Stuy Brooklyn where I used to live.  I walked out of the ER.  I figured no one was watching.  I was right. I call it Hellhole Hospital.  The natives call it Deathhole hospital.  The Police and EMTs call it Woodkill Hospital.  Same diff.  You know what their excuse was?  "She's just an alcolholic!"  She's just a cash cow.  They have a 133 bed psych unit, a 29 bed drug detox unit, and a 29 bed alcohol detox unit.  "Oh, she keeps coming back to dry out so she can have a cheaper habit."  No, she keeps coming back because she wants help and you're not giving her what she needs.  And you're taking money to abuse her. I hope you took a look at my new posts.  Thanks again. Baruch Hashem.  Hoshia na. Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help! P.S.  If you want horror stories, maybe you can listen to mine.  I have the goods to back it up.  I can document abuse involving Class II Controlled Substances.   I don't think those med records can be tamplered with.  I have seen evidence of electronic chart tampering and went to the Kings County District Attorney's Office about it.   I think that may be part of the reason "they kept putting me away." The hospital involved uses a vendor supplied system and the vendors keep audit trails to protect themselves.  I have tried to follow through on this stuff, but I keep getting sick (physically) and then I kept getting quite illegally thrown in the bin. In New York State you need a Two Physician Certificate.   I spent 77 days in the Hospital on a 2PC signed by a Nurse Practicioner who cannot do so who claimed I was suicidal when I was not and said so.  There had been a fire in my apartment so I needed to go to the one Hospital in NYC that had my meds.  The Red Cross ratted me out and then I couldn't leave the borough to go to Manhattan to the Hospital that had my medication. The Red Cross are another story.  I don't know anyone they helped, but I know a lot of people they screwed. I've got much more.  I just can't fill out forms and coming up with the specifics gives me headaches.  I really need help.