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Bad day?

Sat, 10/23/2010 - 14:23
Hello, I wanted to make this story because I'm scared, again.  I woke up at 8:29, and by almost 12:00, I have had 11 seizures.  Usually on a good day I have 15 seizures.  This seems like a lot in a short period of time, 3 hrs. and 30 minutes almost.  Can anybody provide advice and support?

Comments

Re: Bad day?

Submitted by zealot on Sat, 2010-10-23 - 17:02

Just when I start to feel sorry for myself I read something like this and, baruch Hashem, I count my blessings.

I have been having a lot of seizures, too.  I can't count them because I only know I've had some of them because of how bad I feel afterwards.  The absence seizures I don't know about unless someone tells me or I become atonic and scrape myself up off the ground.

You need help.  You need a good Dr.  That is increasingly difficult to find.

Why are you alone having so many seizures?  This is extremely disturbing.  My situation is not too different from yours.  I understand the fear and despair as I am battling them too.

I found another good article.  I wonder if the spam trap will let it through:  http://www.patient.co.uk/doctor/Temporal-Lobe-Epilepsy.htm

Well I got the captcha gotcha, but I'll get past that after two or three tries.  My blog is a little strange, but you'll be able to identify with some of the posts.  Just skip what doesn't make sense.

I just realised you posted in the youth forum.  My blog is pretty grown up.  Maybe you shouldn't read it, but if you reply here, I will get back to you.

Please know that you are not alone.  There are lots of us out there who go through the same thing and there are lots of us out there who care.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

Epilepsy Carpe Diem:  Images of Auras of Temporal Lobe Epilepsy

http://psychout.typepad.com/blog/2010/10/wikipedia_nys_law_enforcement_www_omh_state_ny_us_www_nj_humanservices_dmhs_us_gov_jfsatlantic_jewish_federation_atlantic_pol.html

Epilepsy Carpe Diem:  Images of New York State Police Cars and Google Searches

http://psychout.typepad.com/blog/2010/10/epilepsy-carpe-diem-images-of-auras-of-temporal-lobe-epilepsy.html

There's more to them than meets the eye.  I'm having trouble writing and putting stuff together so I have to do it this way.  Sometimes the shortest distance between two points isn't a two-dimensional line.

Just when I start to feel sorry for myself I read something like this and, baruch Hashem, I count my blessings.

I have been having a lot of seizures, too.  I can't count them because I only know I've had some of them because of how bad I feel afterwards.  The absence seizures I don't know about unless someone tells me or I become atonic and scrape myself up off the ground.

You need help.  You need a good Dr.  That is increasingly difficult to find.

Why are you alone having so many seizures?  This is extremely disturbing.  My situation is not too different from yours.  I understand the fear and despair as I am battling them too.

I found another good article.  I wonder if the spam trap will let it through:  http://www.patient.co.uk/doctor/Temporal-Lobe-Epilepsy.htm

Well I got the captcha gotcha, but I'll get past that after two or three tries.  My blog is a little strange, but you'll be able to identify with some of the posts.  Just skip what doesn't make sense.

I just realised you posted in the youth forum.  My blog is pretty grown up.  Maybe you shouldn't read it, but if you reply here, I will get back to you.

Please know that you are not alone.  There are lots of us out there who go through the same thing and there are lots of us out there who care.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

Epilepsy Carpe Diem:  Images of Auras of Temporal Lobe Epilepsy

http://psychout.typepad.com/blog/2010/10/wikipedia_nys_law_enforcement_www_omh_state_ny_us_www_nj_humanservices_dmhs_us_gov_jfsatlantic_jewish_federation_atlantic_pol.html

Epilepsy Carpe Diem:  Images of New York State Police Cars and Google Searches

http://psychout.typepad.com/blog/2010/10/epilepsy-carpe-diem-images-of-auras-of-temporal-lobe-epilepsy.html

There's more to them than meets the eye.  I'm having trouble writing and putting stuff together so I have to do it this way.  Sometimes the shortest distance between two points isn't a two-dimensional line.

Re: Bad day?

Submitted by trentonbest on Mon, 2010-10-25 - 17:52
I really do want to read it, if you don't mind.  Well, this was on a weekend.  Why is it so frightening.  The only time someone is there is when I am at school, which doesn't really count because no one knows what's happening in the first place, unless I tell them the story or if they have them.  Haha.  Why do you have trouble writing?

Re: Bad day?

Submitted by zealot on Mon, 2010-10-25 - 20:05

Trent,

I would love to have you read the blog.  If you are in college, you are certainly old enough to read it.  Some of the stuff you will identify with, the internet tech geek search stuff you can skip if it bores you.  If you're a fellow geek, you'll like that stuff.

I have trouble writing because I've had too many left temporal lobe seizures.  That's the part of the brain that writes.  Mine is fried.

Weekends can be scary because there's not much in the way of support available unless you call 911.  That's something I avoid doing at all costs.  My hatred of hospital ERs may or may not be my undoing.  Based on the lack of or mis treatment I receive, for me staying away is safer than going, but it's different for everyone.

It's tough to have to keep explaining yourself.  Epilepsy scares people.  I'm not sure why.  It never scared me.  Maybe that's because deep down I've known what was wrong since I was a kid.

If you're having so many seizures you really need to see your neuro.  You shouldn't be having seizures every day, let alone more than ten in three hours.  I've been there.  I just got through a few really bad days.

I get email notifications so write any time you feel like it and I'll try to get back to you.  Take good care of yourself.

Baruch Hashem.  Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

Trent,

I would love to have you read the blog.  If you are in college, you are certainly old enough to read it.  Some of the stuff you will identify with, the internet tech geek search stuff you can skip if it bores you.  If you're a fellow geek, you'll like that stuff.

I have trouble writing because I've had too many left temporal lobe seizures.  That's the part of the brain that writes.  Mine is fried.

Weekends can be scary because there's not much in the way of support available unless you call 911.  That's something I avoid doing at all costs.  My hatred of hospital ERs may or may not be my undoing.  Based on the lack of or mis treatment I receive, for me staying away is safer than going, but it's different for everyone.

It's tough to have to keep explaining yourself.  Epilepsy scares people.  I'm not sure why.  It never scared me.  Maybe that's because deep down I've known what was wrong since I was a kid.

If you're having so many seizures you really need to see your neuro.  You shouldn't be having seizures every day, let alone more than ten in three hours.  I've been there.  I just got through a few really bad days.

I get email notifications so write any time you feel like it and I'll try to get back to you.  Take good care of yourself.

Baruch Hashem.  Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

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