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Prison Abuse

Sun, 01/24/2010 - 11:58

This is a story of a staggering atrocity that a woman seeking help, wrote to me at my website.

Here is her story:

"My 24 year old son began having grand mal seizures about nine years ago. Until 5 and a half years ago they were very far apart, and his doctor's recommended not to medicate him, explaining that the seizures may disappear completely as he ages as mysteriously as they began.

Then something horrible happened. He was charged with a crime he did not commit (which although his attorney compiled evidence clearing him, he was frightened into taking a plea bargain for 10 years in prison the night before he was to enter the not guilty plea).

The problem with his epilepsy was that on the actual night of his arrest, the officers interrogating him (who did not like his answers because they did not fit their theory of the crime) forced him to stand up for 12 hours straight without food or water in hopes of 'cracking' him.

The result of this was that he fell into a grand mal seizure in which he did not breathe for 10 minutes, and received a concussion. Instead of getting medical help, he was tossed in a cell and left to recover on his own.

This was to change the severity and frequency of his seizures permanantly. It is also probably related to the prosecutor's ability to maniputate him into a plea bargain months later which would never have stood if the case had been heard by a judge or jury.

My son has already served over half of his sentence, and has been brought back to life dozens of times by prison EMTs. He has been on lethal doses of Tegretol, Dilantin, and now Dilantin and Lamictal (300 mg & 400 mg per day each, respectively). I never know if my phone conversations with him will be my last.

My question is this, when the current dosage levels of these drugs quit working, and they will, is there any other medication being tested now that would be worth the risks, and have they found any effective substances for epileptics that do not cause Steven's-Johnson Syndrome?

Right now my son's seizures come in 3's, and always deprive him of oxygen and often cause injuries that in themselves are life threatening. Can you give me info on where I can find out about cutting-edge research on S-J syndrome and medications, including human studies being conducted? Is there anything known that might help keep him from getting Steven's-Johnson?"

I gave her several links, a list of anti epilepsy drugs (anti-epileptic drugs) with their possible side-effects: http://www.webmd.com/epilepsy/medica...treat-seizures

I also included a site that helps give information for prisoners who suffer from epilepsy:
http://www.epilepsy.org.uk/sites/epi..._prisoners.pdf

And another website with a table of epilepsy drugs, brand names, average dose, treatment and possible side effects: http://www.epilepsysociety.org.uk/Ab...gsusedinadults

I also urged her to call her local State Representative and Congressman. Do you think she has any other recourse?

 

phylisfeinerjohnson

www.epilepsytalk.com 

Comments

Re: Prison Abuse

Submitted by phylisfjohnson on Sat, 2010-10-23 - 09:31

No Tadzio, I haven't heard anything more.  But thanks for the links.  The stories are appaling!    Phylis Feiner Johnson www.epilepsytalk.com

 

No Tadzio, I haven't heard anything more.  But thanks for the links.  The stories are appaling!    Phylis Feiner Johnson www.epilepsytalk.com

 

Re: Prison Abuse

Submitted by zealot on Sat, 2010-10-23 - 10:14

Phylis,

I wish you would start a forum on hospital abuse.  I have been denied food, meds, sleep, needed medical care, etc., and not just in psych hospitals.

I am constantly accused of "faking" seizures even though I have a diagnosis of epilepsy, which someone always seems to be trying to take away from me.  The fact is I had multiple unprovoked seizures by the time I turned five!  Now that I'm 55, I've lost track of how many I have in one week.

I have woken up in four point restraints.  Been injected with medication that caused me to have Grand Mal seizures.  I have also been on toxic doses of AEDs, which is part of the reason why I am now so physically ill.

Prisons get more attention, but the problem is much worse in hospitals, especially once you add the word psychiatric.

If you have a psychiatric diagnosis, it is not safe to go to a medical ER for treatment, because if they are under census in psych or have a sweet-heart deal with another hospital, you will be denied medical treatment, "cleared," illegally committed, denied treatement, and be given mistreatment and abuse.

It has happened to me and countless others.  If my circumstances were different and I were not so traumatised that I cannot face the details, I would have lodged formal complaints with the New York State Inspector General's Office among others.  I have already spoken to them and they are expecting snail mail complaints.

I don't know if you've noticed that I'm light on specifics.  I have to protect myself.  I will eventually, I pray, be able to put my story together in a precise and cogent manner and file appropriate complaints.

Laws are being broken, rights are being violated and denied, people like me are sick and dying or dead.

This is an extremely serious issue.  Please take a look at it.

Baruch Hashem.  Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

Phylis,

I wish you would start a forum on hospital abuse.  I have been denied food, meds, sleep, needed medical care, etc., and not just in psych hospitals.

I am constantly accused of "faking" seizures even though I have a diagnosis of epilepsy, which someone always seems to be trying to take away from me.  The fact is I had multiple unprovoked seizures by the time I turned five!  Now that I'm 55, I've lost track of how many I have in one week.

I have woken up in four point restraints.  Been injected with medication that caused me to have Grand Mal seizures.  I have also been on toxic doses of AEDs, which is part of the reason why I am now so physically ill.

Prisons get more attention, but the problem is much worse in hospitals, especially once you add the word psychiatric.

If you have a psychiatric diagnosis, it is not safe to go to a medical ER for treatment, because if they are under census in psych or have a sweet-heart deal with another hospital, you will be denied medical treatment, "cleared," illegally committed, denied treatement, and be given mistreatment and abuse.

It has happened to me and countless others.  If my circumstances were different and I were not so traumatised that I cannot face the details, I would have lodged formal complaints with the New York State Inspector General's Office among others.  I have already spoken to them and they are expecting snail mail complaints.

I don't know if you've noticed that I'm light on specifics.  I have to protect myself.  I will eventually, I pray, be able to put my story together in a precise and cogent manner and file appropriate complaints.

Laws are being broken, rights are being violated and denied, people like me are sick and dying or dead.

This is an extremely serious issue.  Please take a look at it.

Baruch Hashem.  Hoshia na.

Devorah Zealot Soodak http://psychout.typepad.com/ the zealot needs help!

Re: Prison Abuse

Submitted by phylisfjohnson on Sat, 2010-10-23 - 13:15

That is an important topic for a column.  Thanks for the idea.  I'll put it in my thinking cap and do some research when I have the time.

Thanks lots!       Phylis Feiner Johnson    www.epilepsytalk.com

 

That is an important topic for a column.  Thanks for the idea.  I'll put it in my thinking cap and do some research when I have the time.

Thanks lots!       Phylis Feiner Johnson    www.epilepsytalk.com

 

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