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Short-term memory loss post- seizure

Sat, 06/04/2005 - 14:56
Please, does anyone identify with this problem?My son, 21yo now, has always found that after a seizure he has no memory of the past 2-6 hours preceding the seizure.e.g. went out to tea with his friend to celebrate their anniversary and had a seizure later that night. The following day he could not remember anything of that evening from when I had dropped him at her place at 6.30pm. Still doesn't till this day 2yrs later. (by all accounts they had a lovely time..)He finds this aspect of his condition the most upsetting. This is just one of many examples. My heart aches seeing the sad look on his face as we piece together his movements on a particular day.This doesn't help when trying to identify auras etc. either as he doesn't remember.Does anyone find this happens to you?I have read many posts about memory in general and see this in him too, but not seen much about this other aspect.Thanks for your time,Maryanne.

Comments

Re: RE: RE: RE: RE: Short-term memory loss post- seizure

Submitted by danieljones2006 on Tue, 2010-06-15 - 03:10
I have had short term memory loss problems but thanks to my doctor ot my luck, i am fine now. Although i was not acutely affected. My psychiatrist heped me out. Now i am doing good.

Re: RE: RE: RE: RE: Short-term memory loss post- seizure

Submitted by scruffy6666 on Tue, 2010-06-22 - 11:43
A ski accident left me with seizures and memory loss. I am 49 physically, mentally I am still 28. Memory loss is a tough thing to go through alone, which most of us do. No one can be expected to understand what it is like when our own doctors don't know how the brain works, and we aren't handed a guide book that explains what we will or won't remember. I have over time realized that the memories i seem to retain are dramatic, traumatic, emotional, or basically anything I would think, talk, or write about over and over. When you are able to remember something when speaking to someone, they begin to question whether your memory loss is real or are you making it up for attention. My own family still doesn't understand or believe entirely and they've known me 20 years. I have not matured mentally since the accident since maturity comes with experience, experiences we remember and learn from. You don't remember, so how do you learn and mature? Men my age feel like grandfathers. I am seen as strange, something no one can figure out. I go to rock concerts, play pool with a group of 27 yr old guys. I go out alone. I have nothing in common with people my age. Since this is a never ending process, the longer we live, the worse it gets. The body ages, the mind does not. I have noticed a pattern over the years as I've lost friends. Neighbors matured, I didn't. We had nothing in common anymore. Friends get tired of the same stories, the few you do remember. They don't like having a friend they can't reminisce with about the time...... They try to make sense of you, why you dress & act young, and the rumors start. Insecurity takes over when you realize that these people now know more about you than you do yourself. You're uncomfortable wondering what they know that you can't remember. Everyone assumes you remember and are baffled by the blank stare you give when you don't know what they are talking about. They think you're on drugs, anything to explain your odd behavior. After three years, my time is up with them, and I move on to the next chapter.

Re: RE: RE: RE: RE: Short-term memory loss post- seizure

Submitted by bucy1998 on Thu, 2010-10-14 - 09:45

My daughter is 11 and she is stuck at the age of 6 mentally.  She was 6 when she first started having complex partial siezures originating from the left temporal lobe.  She had them for about 2 years and they have stopped as far as I know.  I have not witnessed any, that is.  She is in 5th grade at a kindergarden level.  She is getting special education, but the gap is getting huge between her and her general ed classmates.   The school has reported her having great days where she makes gains, then bad days where she can't even remember her teacher or where her seat is.  Yesterday she did not even know who her uncle was, this is startling considering he is also one of her teachers and our neighbor.  I was wondering if you have good & bad days?   If you experience knowing something one day and then not the next?  We have traveled to the University of Michigan so many times to see Neurology, Endocrinology, Genetics, Behavioral Health and I feel that I am just being tossed around.  Her teachers are limited with what they can do for her as we are from a very small town far away from any cities that could offer a more specialized education. 

If you have found any help or information on this type situation or have experiences to share, I would be really interested in the info.  I need to find out how to reach her, how to teach to her and what her potential is.

Thanks

My daughter is 11 and she is stuck at the age of 6 mentally.  She was 6 when she first started having complex partial siezures originating from the left temporal lobe.  She had them for about 2 years and they have stopped as far as I know.  I have not witnessed any, that is.  She is in 5th grade at a kindergarden level.  She is getting special education, but the gap is getting huge between her and her general ed classmates.   The school has reported her having great days where she makes gains, then bad days where she can't even remember her teacher or where her seat is.  Yesterday she did not even know who her uncle was, this is startling considering he is also one of her teachers and our neighbor.  I was wondering if you have good & bad days?   If you experience knowing something one day and then not the next?  We have traveled to the University of Michigan so many times to see Neurology, Endocrinology, Genetics, Behavioral Health and I feel that I am just being tossed around.  Her teachers are limited with what they can do for her as we are from a very small town far away from any cities that could offer a more specialized education. 

If you have found any help or information on this type situation or have experiences to share, I would be really interested in the info.  I need to find out how to reach her, how to teach to her and what her potential is.

Thanks

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