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Alteration in mood following a seizure

Mon, 10/04/2010 - 08:34

I had my second seizure a few days ago...my own darn fault because I ran out of dilantin and my usual pharmacy told me they could no longer fill it and that I now had to either get it via some sort of mail plan or to go in person to the hospital to get it (hospital health insurance changed their rules).

The first seizure...over a year ago...I was totally distracted afterwards by the fractured shoulder that had I had incurred as a result of it. However this time, uninjured, I encountered some odd moods and feelings and I am interested to know if this is normal. The only way to describe it is...eerie, creepy. I feel like I'm walking around in an altered reality...if that makes any sense. My memory was also affected significantly....though this does seem to be improving with time. I am 58 so starting to get that normal forgetfulness of aging anyway....but this is/was much worse. It was scary, truly.

Since the second seizure (occurred about a week ago)...it's been extremely eerie and weird. I feel apprehensive....and almost scared. Of what, I have no idea. It's just this general feeling of trepidation, anxiousness, fear.

If anyone read Superman as a child, there was an alternate universe, Bizarro world...where everything was weird and backwards. And this is how I feel....like I'm in some alternate and backwards version of my usual reality. Is this normal? Will it continue to gradually get better with time? What in the heck causes this to happen after a seizure?

Thanks so much

Comments

Re: Alteration in mood following a seizure

Submitted by phylisfjohnson on Mon, 2010-10-04 - 11:21

Tonialpha is quite right.  Suddenly stopping an anti-seizure med does serious stuff to your head.

I don't know why you can't get an over-ride from your pharmacist and I certainly fail to believe they "ran out of it."  Dilantin is one of the oldest and most common AEDs around.

One thing you can do is to get your doc to write a bigger prescription, so you won't run out.  Or maybe do a 90-day script.

Another option -- (for the future) is to change pharmacies.

Also, you could call Pfizer's Connection to Care (1-800-707-8990) to see about getting your Dilantin.

As far as mail order is concerned, you can try Pharmahelper – a comparison search engine for prescription medicine and detailed drug knowledge.  It helps you save money and buy prescription drugs safely online.  You can also research drugs, compare pharmacy prices, even find drug savings based upon your particular condition.  http://www.pharmahelper.com/

I hope this helps...     Phylis Feiner Johnson    www.epilepsytalk.com

Tonialpha is quite right.  Suddenly stopping an anti-seizure med does serious stuff to your head.

I don't know why you can't get an over-ride from your pharmacist and I certainly fail to believe they "ran out of it."  Dilantin is one of the oldest and most common AEDs around.

One thing you can do is to get your doc to write a bigger prescription, so you won't run out.  Or maybe do a 90-day script.

Another option -- (for the future) is to change pharmacies.

Also, you could call Pfizer's Connection to Care (1-800-707-8990) to see about getting your Dilantin.

As far as mail order is concerned, you can try Pharmahelper – a comparison search engine for prescription medicine and detailed drug knowledge.  It helps you save money and buy prescription drugs safely online.  You can also research drugs, compare pharmacy prices, even find drug savings based upon your particular condition.  http://www.pharmahelper.com/

I hope this helps...     Phylis Feiner Johnson    www.epilepsytalk.com

Re: Alteration in mood following a seizure

Submitted by smallsock on Mon, 2010-10-04 - 13:41
I know this does not answer the questions you have but if I were you I would file a complaint with the pharmacy or someone.  I don't think it is your fault you ran out of meds.  Running out of medication and letting a person's health be adversely affected is unacceptable.  If you don't feel comfortable doing it, then let a friend help.  That could have caused you serious, serious problems.

Re: Alteration in mood following a seizure

Submitted by smallsock on Mon, 2010-10-04 - 13:42
I know this does not answer the questions you have but if I were you I would file a complaint with the pharmacy or someone.  I don't think it is your fault you ran out of meds.  Running out of medication and letting a person's health be adversely affected is unacceptable.  If you don't feel comfortable doing it, then let a friend help.  That could have caused you serious, serious problems.  I mean think about it, what if you were trying to be seizure free to regain a driver's license, or to return to work, and your pharmacy did this?

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