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Back-to-back seizures
Wed, 09/29/2010 - 23:25Comments
Re: Back-to-back seizures
Submitted by tonialpha on Fri, 2010-10-01 - 11:17
Keep a diary like phylis suggested! The diary really helps because when I see the doctor. I can remember everything. If things are bad during the week I can call the doctor and medication can be changed.
Clustering is what I get! I had 3 seizures last night. I have liquid valium when I need to take it.
When they first started it scared me, I would go unconsious. I would be out for a long time. I have had 2 surgeries and a vagal nerve stimulator and when they occur. I do not get that effect of going unconscious for a long period of time now. Now I exercise more and eat better and the seizures are a lot better. The effects of the seizure are better too.
Keep a diary like phylis suggested! The diary really helps because when I see the doctor. I can remember everything. If things are bad during the week I can call the doctor and medication can be changed.
Clustering is what I get! I had 3 seizures last night. I have liquid valium when I need to take it.
When they first started it scared me, I would go unconsious. I would be out for a long time. I have had 2 surgeries and a vagal nerve stimulator and when they occur. I do not get that effect of going unconscious for a long period of time now. Now I exercise more and eat better and the seizures are a lot better. The effects of the seizure are better too.
Re: Back-to-back seizures
Submitted by stanrainbolt@live.com on Thu, 2010-09-30 - 12:57
Mastergen,
Sorry to hear your dilemma. I am sitting here recovering from a series of seizures that occurred Monday and
Teusday. Every waking moment those two days I was either in a myclonic or partial complex or "walking on
eggshells" waiting for the next one to start. Have had seizures(the whole array) most of my life(I'm 57). For
most of my adult life the seizures have been almost non-existant(by God's grace) through different theraputic
anti-convulsants. This series of non-stop "baby" seizures I experienced Mon&Tues was very frightening. About
two weeks ago I had 3 tonic clonic seizures in a 24-hour period. That prompted a Dr. visit and he added Pheno-
barbitol to my Lamictal. All this activity has followed a period of 10 years or so of averaging one or two nocturnal
seizures-a-year. Never had a daytime seizure in that 10-year period. When I got ahold of my doctor yesterday
(Wed) following those two days of repetitive, non-stop seizures, he instructed me if this ever happens again I am to go to the ER and they have been instructed to give me an IV of Ativan to stop the series. He also upped my phenobarbs. I am feeling much better today(Thurs). Just a little spacey-headed.
Hang in there. Don't push yourself. And keep communicating with your doctor. Both of us hit a pothole and it scared the you-know-what out of me. Hopefully, both of us are on the other side of this rough spot and pretty soon this will be a distant memory/nightmare.
One more note. My trigger for seizures is and has always been stress. Probably no coincidence a messy job/financial situation has had me stressing out the past several weeks. Ya think? Find your "trigger" and avoid it.
I will pray to God for you. Please do the same for me.
Thanks for being there. stanrainbolt@live.com anytime you need to write.
Mastergen,
Sorry to hear your dilemma. I am sitting here recovering from a series of seizures that occurred Monday and
Teusday. Every waking moment those two days I was either in a myclonic or partial complex or "walking on
eggshells" waiting for the next one to start. Have had seizures(the whole array) most of my life(I'm 57). For
most of my adult life the seizures have been almost non-existant(by God's grace) through different theraputic
anti-convulsants. This series of non-stop "baby" seizures I experienced Mon&Tues was very frightening. About
two weeks ago I had 3 tonic clonic seizures in a 24-hour period. That prompted a Dr. visit and he added Pheno-
barbitol to my Lamictal. All this activity has followed a period of 10 years or so of averaging one or two nocturnal
seizures-a-year. Never had a daytime seizure in that 10-year period. When I got ahold of my doctor yesterday
(Wed) following those two days of repetitive, non-stop seizures, he instructed me if this ever happens again I am to go to the ER and they have been instructed to give me an IV of Ativan to stop the series. He also upped my phenobarbs. I am feeling much better today(Thurs). Just a little spacey-headed.
Hang in there. Don't push yourself. And keep communicating with your doctor. Both of us hit a pothole and it scared the you-know-what out of me. Hopefully, both of us are on the other side of this rough spot and pretty soon this will be a distant memory/nightmare.
One more note. My trigger for seizures is and has always been stress. Probably no coincidence a messy job/financial situation has had me stressing out the past several weeks. Ya think? Find your "trigger" and avoid it.
I will pray to God for you. Please do the same for me.
Thanks for being there. stanrainbolt@live.com anytime you need to write.