Community Forum Archive

The Epilepsy Community Forums are closed, and the information is archived. The content in this section may not be current or apply to all situations. In addition, forum questions and responses include information and content that has been generated by epilepsy community members. This content is not moderated. The information on these pages should not be substituted for medical advice from a healthcare provider. Experiences with epilepsy can vary greatly on an individual basis. Please contact your doctor or medical team if you have any questions about your situation. For more information, learn about epilepsy or visit our resources section.

What is wrong with me?

Fri, 09/10/2010 - 18:19

I'm new to this site but I have a few questions and experiences which has brought me here,

 About 4-5 years ago I was working in a grocery store, I was being trained an I was helping a customer at the time when all of a sudden my vision just went from normal to tunnel vision to nothing and my hearing just shut off an I was unconcious. When I came to I was on the floor with my head in a co-workers lap and they said to me that I had a seizure. This was all new to me and scared me really badly, I went to the hospital an had a bunch of tests done but I didn't really hear anything about what happened and what was wrong with me. So I just didn't worry or think much about it. However, after that I found that some mornings I'll get up and I'll get this head rush and black out and then come to like 10 secs later. I asked friends about this and everyone kept telling me its just standing up too fast in the mornings. Anyways, just this morning I got up and went down stairs to get a glass of water an when I had walked into the kitchen I felt this familiar head rush and I just fell to the floor except this time I could see and hear, I just had no control of my body as I was shaking.

 If anyone can just give me any advice, tips or anything, that would be greatly appreciated. I'm really interested as to whats going on with me.

Comments

Re: What is wrong with me?

Submitted by phylisfjohnson on Sat, 2010-09-11 - 16:48

I'm far from being a doctor, but it could be you're suffering from hypoglycemia which is throwing you into seizures. This comes from kick in life.com.  (I agree, a very strange name!)

"Epilepsy and Hypoglycemia are usually thought of as two seperate entities, requiring two seperate treatments. Although not a new concept, many epileptics have never been told by their physicians about the possible link between the two. Diet is not frequently discussed in the treatment of epilepsy, yet it seems to be an important aspect in the control of seizures. It is absurd how physicians can prescribe anticonvulsants, but rarely question the diet of an individual. So, many epileptics face a life of unnecessary anguish and despair, due to uncontrollable seizures that have caused many problems in their lives. For many, the anticonvulsants are taken faithfully, but the seizures continue. Medication must be absorbed in the body in order to work, but how can it be, if the person’s diet is poor. 

Many epileptics have been given the Blood Glucose Tolerance Test, which revealed low sugar tolerance curves. Brain wave patterns of epileptics are similar to those with hyperinsulin. Although these facts alone do not prove association between epilepsy and hypoglycemia, it seems to warrant further study. Balance of the body is necessary for optimum health. Thus, by recognizing and treating low blood sugar, the rest of the body will most likely adjust itself to restore balance." 

Ok...so  the next question is: how is your diet? From your topic line, I assume you're keeping a Daily Seizure Diary.  Are you noting your sleep patterns, what you eat, your activities, emotional or physical changes?  How you feel before a seizure, (auras?) during and after?  The duration of the seizure? 

This might help you better identify your triggers and let your NEW neurologist know what's going on with you.

I don't know where you live, but if you go to my website and type into the search box: Comprehensive List of GOOD Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors, (it's also on the right side-bar, a very popular topic!)you'll see a list of docs, arranged state by state, based on eforum members' positive personal experiences. 

I have no idea why you were not given the results of your previous tests.  Sometimes you have to be real persistant and just barge in there...or insist they send them to you.  (Freedom of Information Act).

Don't listen to your friends, but please, DO go to a doctor pronto.  And in the meantime, keep up your Daily Seizure Diary so you can go there, armed with facts.

GOOD LUCK!     Phylis Feiner Johnson   www.epilepsytalk.com

 

I'm far from being a doctor, but it could be you're suffering from hypoglycemia which is throwing you into seizures. This comes from kick in life.com.  (I agree, a very strange name!)

"Epilepsy and Hypoglycemia are usually thought of as two seperate entities, requiring two seperate treatments. Although not a new concept, many epileptics have never been told by their physicians about the possible link between the two. Diet is not frequently discussed in the treatment of epilepsy, yet it seems to be an important aspect in the control of seizures. It is absurd how physicians can prescribe anticonvulsants, but rarely question the diet of an individual. So, many epileptics face a life of unnecessary anguish and despair, due to uncontrollable seizures that have caused many problems in their lives. For many, the anticonvulsants are taken faithfully, but the seizures continue. Medication must be absorbed in the body in order to work, but how can it be, if the person’s diet is poor. 

Many epileptics have been given the Blood Glucose Tolerance Test, which revealed low sugar tolerance curves. Brain wave patterns of epileptics are similar to those with hyperinsulin. Although these facts alone do not prove association between epilepsy and hypoglycemia, it seems to warrant further study. Balance of the body is necessary for optimum health. Thus, by recognizing and treating low blood sugar, the rest of the body will most likely adjust itself to restore balance." 

Ok...so  the next question is: how is your diet? From your topic line, I assume you're keeping a Daily Seizure Diary.  Are you noting your sleep patterns, what you eat, your activities, emotional or physical changes?  How you feel before a seizure, (auras?) during and after?  The duration of the seizure? 

This might help you better identify your triggers and let your NEW neurologist know what's going on with you.

I don't know where you live, but if you go to my website and type into the search box: Comprehensive List of GOOD Neurologists…Epileptologists…Neurosurgeons…and Pediatric Doctors, (it's also on the right side-bar, a very popular topic!)you'll see a list of docs, arranged state by state, based on eforum members' positive personal experiences. 

I have no idea why you were not given the results of your previous tests.  Sometimes you have to be real persistant and just barge in there...or insist they send them to you.  (Freedom of Information Act).

Don't listen to your friends, but please, DO go to a doctor pronto.  And in the meantime, keep up your Daily Seizure Diary so you can go there, armed with facts.

GOOD LUCK!     Phylis Feiner Johnson   www.epilepsytalk.com

 

Sign Up for Emails

Stay up to date with the latest epilepsy news, stories from the community, and more.