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Nocturnal seizure... what is it?!

Tue, 07/24/2007 - 22:24
Hi all I am new to this forum, and just stumbled across it while trying to search for an explanation of something that happened to me. So my story is... I was on holiays, so was fairly tired after a flight from Australia to New York. I fell asleep around 1:00am and my boyfriend woke up to me at 2:00am having a seizure. Apparently i looked like i was being possessed (charming, i know!). Basically it wasnt jerky movements, but i just lost control of every body movement - i wet the bed, my face muscles had gone all droopy, I couldnt talk except to slur a little bit, and I couldnt sit up. I woke up to the ambulance guys, then within 5 minutes I realised where I was and was starting to be able to speak again and by the time i was in the emergency room, within maybe 20 mins, I was fully functional again. My MRI and CT scans came back totally clear and the neurologist said that it must have been a random seizure (ie he could see no reason for it except possibly exhaustion). My family has a long history of strokes but the doctors said this wasnt a stroke. Does anyone know if this sounds like a type of epilepsy?? If anyone could give me ANY info that would be great. Anyone with a similar story etc. Thank you so much in advance!! alana

Comments

Not sure I agree with that. 

Submitted by Not Ur on Fri, 2017-06-30 - 19:09
Not sure I agree with that.  I am nearly 50 had grand mal idiopathic epilepsy that only happens in REM sleep and I have never had a wake state seizure.  So the idea that they will take over your life so you are a walking lightening rod is not something I can agree with.  I am not medicated by choice.  I tried about 25 scripts and only one worked reasonably well but because it has so many other nasty side effects I opted not to deal with it.  It is a barbitol.  Not even it was 100%....I sometimes think that medicine is a gamble.  I have been mis-diagnosed more times than not by people assuming they know what they can't know.  I have a number of other issues which have overlapping symptoms and this could confuse clinicians into thinking things.Example I have hemi-plegic migraines...these have been assumed TIA's.  I have a lack of tact due to autism and I have been assumed a mood disorder/personality disorder.  It is something you learn to live with some less than others.  Some treat this as a pariah issue....as if anyone is perfect NOT.  If it bothers you that much do what you can to feel control over it but do not become a walking disorder.  I understand I am not typical...never shall I be a cookie cutter of my brother.  I am not pleasantville material...but I live with my conditions.  Great for those who have means to completely control them but some of us never will.  I find today at 50 I nearly never even realize I have had an episode.  Meaning that more often than not I experience aches and pains like that aftermath of a seizure just because I am older.  Tiredness is part of a daily routine for me ....the only difference is cleaning my bedding more than I probably would.  Would I want this if i could have a perfect life...NO  but does it define me  NO. 

Re: Nocturnal seizure... what is it?!

Submitted by E_Loner on Thu, 2008-04-03 - 10:30

I have been an epileptic since age 2. From age 2 until age 35 I had seizures while awake. From age 35 on I have experienced nocturnal seizures. As a matter of fact/proof I set up my jvc camera and recorded my sleep habits. If I new/felt I had no seizure activity that night I simply erased, but about 6 mornings ago I had that feeling and my bedspread looked like a tornado had hit it. Sure enough, I found the seizure on my camera. As I sit here now I am copying it to a vhs tape.

Yes, it reads like a seizure. If you can, go see a neurologist. If he has doubt simply record your sleep patterns.  I was lucky to find a neurologist who I can trust and trust me.

I must admit, seeing this seizure is not like the others I have seen. I have viewed my seizures after docotrs recorded them prior to possible surgery. I have been lucky to never loose control of my bladder. But in this recording I now understand why I have neck arthritis, tmj problems, and spinal problems. I to am making facial expressions and bending back and then making this awful sound. For me the only good thing about nocturnal epilepsy is the fact I now have a drivers license. But, I only drive when I feel I did not have any seizures.

 Good Luck, E_Loner

I have been an epileptic since age 2. From age 2 until age 35 I had seizures while awake. From age 35 on I have experienced nocturnal seizures. As a matter of fact/proof I set up my jvc camera and recorded my sleep habits. If I new/felt I had no seizure activity that night I simply erased, but about 6 mornings ago I had that feeling and my bedspread looked like a tornado had hit it. Sure enough, I found the seizure on my camera. As I sit here now I am copying it to a vhs tape.

Yes, it reads like a seizure. If you can, go see a neurologist. If he has doubt simply record your sleep patterns.  I was lucky to find a neurologist who I can trust and trust me.

I must admit, seeing this seizure is not like the others I have seen. I have viewed my seizures after docotrs recorded them prior to possible surgery. I have been lucky to never loose control of my bladder. But in this recording I now understand why I have neck arthritis, tmj problems, and spinal problems. I to am making facial expressions and bending back and then making this awful sound. For me the only good thing about nocturnal epilepsy is the fact I now have a drivers license. But, I only drive when I feel I did not have any seizures.

 Good Luck, E_Loner

Re: Nocturnal seizure... what is it?!

Submitted by Loriannh22 on Sun, 2009-02-22 - 22:33

Hi Alana-

It also sounds to me like a seizure.  I don't necessarily have too much information to tell you with the exception of my actual story, which I wrote and you can read just for a bit more info of what it's like (and the dumb things I did at first!)

Hope it helps a bit.

Loriann

Hi Alana-

It also sounds to me like a seizure.  I don't necessarily have too much information to tell you with the exception of my actual story, which I wrote and you can read just for a bit more info of what it's like (and the dumb things I did at first!)

Hope it helps a bit.

Loriann

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