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Does a seizure disorder = epilepsy?

Sat, 03/29/2008 - 00:15

Greetings, all!

Six weeks ago I was diagnosed with "idiopathic seizure disorder." At my follow up appointment today I asked my neuro for my diagonsis and he said the same thing. He doesn't seem to know what kind of seizures I am having. The EEG showed seizure activity in various parts of the brain. The only thing we seem to know for sure is that I am NOT having grand mal seizures.

So, does having a seizure disorder = epilepsy? Is there a magic moment when a seizure disorder converts to epilepsy? I am not eager for a label, but I just would like to know what to call the stuff happening to me. My seizures change and seem to cover both the complex and simple partial seizure arena.

I am currently on Keppra 3000 mg and Dilantin 300 mg a day and I still have seizures. I have started the long process of starting Lamictal and in 8 weeks he will start weaning me off the Dilantin.

Anyone else have a seizure disorder? Any advice to long and slow process of starting and weaning meds. The side effects of my Keppra/Dilantin cocktail is driving me crazy. I can't tell you how excited I am to add another med to the mix. (Can you hear my cyber-voice dripping with sarcasm?)

Any advice or comments welcome. I've been reading everything I can about seizures, but I can't seem to find myself in any article or textbook. If my EEG wasn't abnormal I would think it was all in my head. (pun intended)

Thanks in advance!!

~christy

 

 

 

 

 

 

Comments

Re: Does a seizure disorder = epilepsy?

Submitted by eaglefan30 on Sun, 2009-09-20 - 12:31

Idiopathic generalized epilepsy (IGE) is a group of epileptic disorders that are believed to have a strong underlying genetic basis. Patients with an IGE subtype are typically otherwise normal and have no anatomical brain abnormalities. Patients also often have a family history of epilepsy and seem to have a genetically predisposed risk of attack. IGE tends to manifest itself between early childhood and adolescence although it can be eventually diagnosed later. The genetic cause of some IGE types is known, though inheritance does not always follow a simple monogenic mechanism. That is something that i found on the net for u..

Idiopathic generalized epilepsy (IGE) is a group of epileptic disorders that are believed to have a strong underlying genetic basis. Patients with an IGE subtype are typically otherwise normal and have no anatomical brain abnormalities. Patients also often have a family history of epilepsy and seem to have a genetically predisposed risk of attack. IGE tends to manifest itself between early childhood and adolescence although it can be eventually diagnosed later. The genetic cause of some IGE types is known, though inheritance does not always follow a simple monogenic mechanism. That is something that i found on the net for u..

Re: Does a seizure disorder = epilepsy?

Submitted by hayhaycow on Thu, 2010-08-12 - 23:07
Im 16 and had my first seizure this past year. They told me that since i had had only one seizure then it was a seizure disorder but then i had another one and then it turned into epilepsy. One seizure it is a seizure disorder but two or more is epilespy (at least that was how it was explained to me). I was on lamictal xr as well and it took forever to increase and i was doing well on my dose until they thought i was having absent seizures. a week later after the increased my dose of lamictal i had another seizure. They dont really know what kind it was they think it was some kind of absent plus a little regular one. I hope they figure everything out for you and you dont have to have another one to know if it is epilepsy.

Re: Does a seizure disorder = epilepsy?

Submitted by Addibaby on Wed, 2010-09-08 - 18:56
Yes, that is how it was explained to me too with my son. But they never tell you to look into why you are having the seizures in the first place. I would see if there is a reason you are suddenly having seizures.

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