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Do seizures cause pain?
Thu, 06/08/2006 - 17:29Topic: Parents & Caregivers
Hi
I am the mother of a 5 1/2 year old who is progressively getting worse. His name is Danny. He has many types of seizures. He has at least 10 notable seizures a day and probably many more. he often requires interventions such as oxygen, suctioning, extra clonopin or diastat. he is on several medications clonopin, keppra, felbatol, phenobarb, and vigabitrin and several others for gi issues. Danny has tried all the other meds to no avail. We recently were told that there are only options left are to do a surgery that splits the 2 hemispheres or to do nothing. We feel this child is in pain and requires more sedation to be comfortable. The neurologist says that seizures are not painful. Danny is currently functioning at a 0-3 month level. He did progress when he was a baby. He did sit, stand and smile all of that is now gone. I am wondering do seizures cause pain? I think they do.
Comments
Re: Do seizures cause pain?
Submitted by Robbie_Derk on Tue, 2010-09-07 - 23:26
Go get your back checked out. Chiropractor might help.
Re: Do seizures cause pain?
Submitted by rootbeergirl16 on Thu, 2006-06-08 - 23:21
Dear Dannys Mom,
I wish that I had some wonderful words of wisdom to share with you or some magical thing to give you to make all your questions and fears go away. I want you to know that I can feel your pain and sadness as that parent of a special child myself I can so very much understand what you are feeling (or at least I think I can) Know that you have support here and if ther is anything I can do or if you just want some one to talk to or talk at please do not hesitate to let me know. I am sending lots of good thoughts your way and a BIG ((((HUG))) to your precious little angel.
Pam
Re: Do seizures cause pain?
Submitted by aariaa on Sun, 2010-05-02 - 08:10
I have been having night seizures already 8 years and I believe You that they cause pain because tt does cause to me. Doctors are stupid - thats what I learnt in my life. They wouldnt even believe that I can rememeber my name with such brain activity- that does show that epilepsy is underresearched!!! when i took medicine - it was killing me totally. now when i am not on medicine, my seizures instead of being every day is only every 3 months and i got my life back. I would totally suggest trying gluten free milk free diet and stay away from coke, coffee and eat max 50 carbs per day. try GARD diet. look how your organism reacts to everything you eat and do. you are the best doctor for yourself. good luck.