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Sick: Sick of seizures, sick of my life

Tue, 08/17/2010 - 04:49
I don't know how much longer I can tolerate this. My body is telling me it wants to give up. My mind doesn't know what to do anymore.

Comments

Re: Sick: Sick of seizures, sick of my life

Submitted by Christopher611 on Tue, 2010-08-17 - 20:30
I am on the generic version of Dilantin but have been on it for a year and it doesn't seem to be working for me. I have also heard that a dozen new drugs have come out that are more potent which is why I am looking to swtich. My doctor wants to switch me to Trileptal (?) I have tried both Lamictal and Keppra with not very pleasant side effects as I would cry randomly and be overly emotional.

Re: Sick: Sick of seizures, sick of my life

Submitted by Yvexeon49 on Tue, 2010-08-17 - 19:33
Just stick with it and stay positive.  I had my first seizure at 17 and I'm now 31 and will be heading in for surgery either next month or October for a dense grid placement to find the spot and hopefully be able to remove.  On average I have one a week over a year's time frame.  It is difficult at first but you'll work it through.  Life is tougher not being able to drive, but you'll find a way.  During my first couple years I probably would have been worried about brain surgery but at the moment I'm excited, because I have the hope of eliminating or significantly reducing them.

Re: Sick: Sick of seizures, sick of my life

Submitted by MichaelK on Sat, 2010-08-21 - 10:06
Thanks. I am trying to stay positive, but it is tough. After 26 years of misdiagnoses I had spenoids last March and they finally found the source of my problem. My seizures got better after they switched medicines but now they are getting worse again. As I mentioned before, I have accomplished the impossible already. In the past 3 years, I have seen it all go to waste and am now facing both depression and more E. It never ends. Never.

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