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Sick: Sick of seizures, sick of my life

Tue, 08/17/2010 - 04:49
I don't know how much longer I can tolerate this. My body is telling me it wants to give up. My mind doesn't know what to do anymore.

Comments

Re: Sick: Sick of seizures, sick of my life

Submitted by Christopher611 on Tue, 2010-08-17 - 20:34
Yeah I hear you. The hardest part for me has been coping with the fact I may have this the rest of my life and it may be uncontrollable. Many neuros have told me it is controllable but a doctor at the Mayo Clinic in Jacksonville said once you are on 3 meds and have seizures on all 3 then their is a less than 10% chance any med would control them. That is what I fear most. I also fear just the effects of the meds--they seem to really change people and I worry if I ever do get off I will not "be the same".

Re: Sick: Sick of seizures, sick of my life

Submitted by tyetye on Tue, 2010-08-17 - 12:50

please be strong!!!!!!!!!!!!!!!!

I'm a caregiver to my 4 year old , he can't tell me whats going onhe doesn't talk,  so i understand feeling alone withlife.

Your not!!!  i

I will talk with you anytime.

Keep your chin up

Bobbi

please be strong!!!!!!!!!!!!!!!!

I'm a caregiver to my 4 year old , he can't tell me whats going onhe doesn't talk,  so i understand feeling alone withlife.

Your not!!!  i

I will talk with you anytime.

Keep your chin up

Bobbi

Re: Sick: Sick of seizures, sick of my life

Submitted by emva01 on Tue, 2010-08-17 - 14:33
Are you taking the brand name Dilantin or generic? When I was switched to the generic ( 10 years ago, I had a GM) Ever since I have been back on the brand, Im sz free.

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