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Sick: Sick of seizures, sick of my life

Tue, 08/17/2010 - 04:49
I don't know how much longer I can tolerate this. My body is telling me it wants to give up. My mind doesn't know what to do anymore.

Comments

Re: Sick: Sick of seizures, sick of my life

Submitted by Christopher611 on Tue, 2010-08-17 - 05:15
I feel your struggle. Even though I have been good living life and all it just happens and then BOOM I get hit with another seizure. I just had my 5th one in 2 years even though my Dilantin was in a normal range. My neuro pretty much gave up and said "I recommend you go here..." and "try this..."...just stay strong you can pull through it. I don't think its your body saing to give up but more your mind...the frustrating effects of everything playing with your head. I thought I was fine and had a tonic clonic in my bathroom and sliced my forehead and had to get 8 stitches so for me at least its more like what more can I take?

Re: Sick: Sick of seizures, sick of my life

Submitted by MichaelK on Tue, 2010-08-17 - 08:50
Thanks for your response. I am glad you made it through that tonic clonic in your bathroom. Very scary! Like you, I have been diagnosed and misdiagnosed, told by an epileptologist that I may not have E but another condition. Another "I give up." All this time my meds have been constantly increased along with the different types of meds that I have to take as well. One time I made the mistake of taking my morning dosage with my mid-morning dosage together and I felt like I should have been taken to the ER. I couldn't stand and was seeing double. There's more, such as my upcoming heart surgery, yet my seizures continue.

Re: Sick: Sick of seizures, sick of my life

Submitted by tonialpha on Tue, 2010-08-17 - 09:39

A lot of people on this group have gone thru a lot of stresses which make me feel not alone.  I have been in my apt. and had a seizure and woke up running in the neighborhood.  I contacted the Neurologist and he changed in his office and changed medication.  It happened again and changed again and it never happened again.  I had several things happen in my life that a lot of us can say no more...The Neurologist or Epileptologist, nurses, family, friends that support us make things liveable.

I also have problems dealing w/ the respiratory system and at one time cardiac system too.  I learned to contacted my physicians patiently.  He only gives us what we can handle!  ( who stated that?)

I wish you the best on your heart surgery!

A lot of people on this group have gone thru a lot of stresses which make me feel not alone.  I have been in my apt. and had a seizure and woke up running in the neighborhood.  I contacted the Neurologist and he changed in his office and changed medication.  It happened again and changed again and it never happened again.  I had several things happen in my life that a lot of us can say no more...The Neurologist or Epileptologist, nurses, family, friends that support us make things liveable.

I also have problems dealing w/ the respiratory system and at one time cardiac system too.  I learned to contacted my physicians patiently.  He only gives us what we can handle!  ( who stated that?)

I wish you the best on your heart surgery!

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