nocturnal seizures - how do you know you are having them?

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Topic: Temporal Lobe Epilepsy - General discussion

This is perhaps a silly question, but how do you know if you are having nocturnal seizures if you live alone? I realize that if I wake up on the floor with a bloody nose it would be a good clue, but... I have TLE with one grand mal 15 years ago. Sometimes I wake up feeling like I have been in the boxing ring for an hour, and once when I was waking up I felt really weird (technical term) and the right side of my body jerked downwards.

How can I tell if any of this is seizures, or just tension? Any suggestions? Thanks.

Comments

Re: nocturnal seizures - how do you know you are having them?

Submitted by rjw19 on Fri, 2010-08-06 - 17:59

rjw19

These are definitely seizures. I have nocturnal auras (minor seizures) and they range from simple shaking in the bed to "sleep-walking". I even once took a shower while in one and came back to bed! Fortunately my wife is very good about looking after me when these happen. Sometimes the day after I feel really tired, headachy, and may or may not have auras during the day itself. Try to look for patterns of what you have been doing, eating or any other consistencies in when these happen. I found stress, diet and similar factors were prevalent, and have learned to manage these to reduce my attacks.

rjw19

These are definitely seizures. I have nocturnal auras (minor seizures) and they range from simple shaking in the bed to "sleep-walking". I even once took a shower while in one and came back to bed! Fortunately my wife is very good about looking after me when these happen. Sometimes the day after I feel really tired, headachy, and may or may not have auras during the day itself. Try to look for patterns of what you have been doing, eating or any other consistencies in when these happen. I found stress, diet and similar factors were prevalent, and have learned to manage these to reduce my attacks.

I have a disabled son who is

Submitted by Anonymous on Fri, 2014-11-07 - 06:40

I have a disabled son who is 20 years old. He began having grand mal seizures shortly after falling asleep about a year and a half ago. I just happened to still be awake and heard him making unusual noise in his room and resisted the urge to stay in my bed and got up to check on him. He was face first on his floor in the middle of a seizure. After several long months of him having a seizure almost every night we finally found the rights meds and he now only has one every six months or so. I know this because for the longest time I slept in the same room with him because I couldn't bear to have him alone when this happens. I am back in my own bed now with a baby monitor on my bedside table and a guard rail on the side of his bed, but I know there MUST be something better out there to detect and alert when these seizures are happening! Anyone know of anything? I have asked his doctor who claims to not know of anything. I have also called medical supply places around town and no one knows either. It seems like such a logical device! I can't imagine there is nothing out there like this!

I am very new to all this and

Submitted by Popsdaddy on Wed, 2017-04-26 - 10:12

I am very new to all this and all the answers that I have read have been very useful. I have only had for seizures that I am aware of the 1st just six weeks ago. nothing for 2 weeks that I am aware of and then to win one day less than 12 hours apart and I was only home from hospital for an hour. I have had a "sane"mind(and I mean absolutely no offence by that but have no idea of the correct terminology or if this even is offensive)for 44 years and this is absolutely freaking me out. one minute you were doing something the next minute people are walking around in circles and your mind is halfway through a sentences you didn't even know you started 6 hours ago. a friend called me on Viber at 2 o'clock in the morning and I answered the phone and just looked at it for 40 minutes and she said I didn't even blink. she screamed at me and cred and tried evthen she forgot to tell me for 2 weeks so I didn't even know this happened. Then she forgot to tell me for 2 weeks so I didn't even know this happened. yesterday morning I woke up and felt so strange. but the stupid brain didn't even tell me that something is wrong. in my case it seems to say just forget it everything's ok. How?? How can the brain not tell you everything is fine when just a few hours later and you feel normal again you look back at the way you were feeling and you can see that it was just so wrong. So wrong! I'm renting now about my own personal events when all I really wanted to say was thank you all for your answers.