MINI Sudden Blackouts - Has anyone had something similar??

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The reason I ask is because it's something that only started over the last few months. I have complex partial epilepsy with primarily left seizures & secondary generalisation sometime.

I've lately developed this 'thing' where whilst having a seizure, I'll suddenly have a mini blackout. It literally last for like a seond or two - and I'm fully consious, but my eyes will just drop closed and then a second later I'llcome to with a massive jolt. It scares the absolute crap out of me... It's like when you've just dosed off, and you wake up instantly feeling your about to be smacked in the head... or like dosing of behind the steering wheel! (I dont drive, it's jsut what it feels like) That terror & fear all in one second.

And then I'm fine.... I'm bound to see my specialist in November, where they will do the final MRI, Video EEG(2 weeks) SPECT scan and Pet scan. But till then it's getting to be a more and more regular occurance with my fits.

Has ANYONE else had this?

Comments

Re: MINI Sudden Blackouts - Has anyone had something similar??

Submitted by jlo1088 on Wed, 2010-06-16 - 03:35

i was wondering what your test results were?

i was diagnosed with a seizure disorder when i was 16. i am now 22 and live outside of philadelphia.

i have had one cat scan and there was no spot on my brain. i started on topamax with great success. i then changed to keppra with great success, because i could not stay awake. about a year lator i started getting these mini blackouts. so, i was swiched to zonegran with no problems. Then my insurance ran out about a year and a half ago so i switched to generic zonegran. i was allright for about three months, then the mini blackouts came back. they got worse as time went on lasting about an hour. i had to quit my job as a baker because i was dropping stuff. recently, they have been so bad that i have been falling down, i even sprained my leg this last april putting deodrant on. my parents understand, but the rest of the family thinks i am nuts. my neurologist thinks i am making this up. so she just keeps uping the mg on the med, but it makes it worse. i am now on generic topamax and still blacking out.

sorry for the long story but, i am very curious what they told you.

i was wondering what your test results were?

i was diagnosed with a seizure disorder when i was 16. i am now 22 and live outside of philadelphia.

i have had one cat scan and there was no spot on my brain. i started on topamax with great success. i then changed to keppra with great success, because i could not stay awake. about a year lator i started getting these mini blackouts. so, i was swiched to zonegran with no problems. Then my insurance ran out about a year and a half ago so i switched to generic zonegran. i was allright for about three months, then the mini blackouts came back. they got worse as time went on lasting about an hour. i had to quit my job as a baker because i was dropping stuff. recently, they have been so bad that i have been falling down, i even sprained my leg this last april putting deodrant on. my parents understand, but the rest of the family thinks i am nuts. my neurologist thinks i am making this up. so she just keeps uping the mg on the med, but it makes it worse. i am now on generic topamax and still blacking out.

sorry for the long story but, i am very curious what they told you.

Darn you, comment thread and

Submitted by polygon on Mon, 2017-05-01 - 11:57

Darn you, comment thread and Google+ for showing my full name instead of my username... Darn you...

I too have had these 'record

Submitted by sirkutter on Wed, 2017-08-09 - 10:54

I too have had these 'record skipping' incidence! Mine occur only in the morning, at least for now. I take requip 1mg and 900 mg of Neurontin (gabapentin). It's interesting in that you all have seizure disorders and experience this. I've never thought about it being a type of seizure. When I wake up, especially if it's earlier than I normally do, I will be fine. But then it's like the remote control was turned off. It lasts for a second or less. My legs stop working and I feel my eyes roll up into my head then fall into a heap on the floor. It does scare the crap out of me. That morning I may have 2-4 episodes of this. I could be walking, dressing. The other day was especially bad. I was coming down the steps! Needless to say I fell. I know that these medications can cause seizures. I take these meds for a severe case of Restless Legs Syndrome. At night without meds I have a sensation of bugs crawling. It can show up in my legs, arms and even my back. It's hell. The meds have helped but I do wonder if it's causing this to happen. Guess I have to check with my doctor. I'm so thankful I found your post! At least I'm not alone....