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Sharing diary info with doctors

Fri, 06/11/2010 - 08:04
Hi everyone, Hope you've had a chance to try out the new features of the epilepsy diary. I have a few questions for you... please write in your responses here or email me! 1- Has anyone tried the sharing feature? Has it worked for you and do you find it helpful? 2- Would you allow your doctor or nurse to view your seizure diary if you had the chance? We are developing the ability to let users share their diary info with their doctors, nurses if they want. It's solely up to each individual to do this, and I wondered what everyone thinks? It can certainly make it easier to share information but it wouldn't be in place of your usual way of communicating with your team.. just an added way of sending information. I hope you're finding the diary helpful and I 'd love to hear your thoughts on these questions and more! Best wishes, Epi_help Resource Specialist

Comments

Re: Sharing diary info with doctors

Submitted by 3Hours2Live on Fri, 2010-06-11 - 17:30
Hi Epi_help, Just a quick note that "Chrome" WebBrowser has been blocking some locations here as "malware" infested. The most stationary ones in concept searches are in the "Community Calendar" for May 2010 with suffixes including "nude" (as of June 11, 2010, 2:30 PM PDT). Tadzio

Re: Sharing diary info with doctors

Submitted by Anonymous on Fri, 2010-06-11 - 21:36
Thanks Tadzio - missed that before! got it now... Take care, Epi_help Resource Specialist

Re: Sharing diary info with doctors

Submitted by victoria.w on Fri, 2010-06-11 - 21:15

Hi,

Unable to comment on the sharing feature as I've never used it.  Second ? - no I wouldn't want to allow direct access to my doctor or nurse because of the way I use the notes facility to record what I consider to be personal information.  If I want to match seizure frequency to mood changes or provide them with other significant information I've recorded - I print out a seizure report - cross reference with my notes and add in a few comments to the seizure report.  Some people may want to allow direct access but I think it would depend on how you use the diary and your relationship with your doctor/nurse. 

I do find the diary extremely useful and know it's really helpful for the medics trying to control my seizures.  They seem to appreciate the information.  From a personal point of view, I find it very helpful to keep track of what's going on: it enables me to provide fairly accurate information instead of a vague overview. 

Victoria

Hi,

Unable to comment on the sharing feature as I've never used it.  Second ? - no I wouldn't want to allow direct access to my doctor or nurse because of the way I use the notes facility to record what I consider to be personal information.  If I want to match seizure frequency to mood changes or provide them with other significant information I've recorded - I print out a seizure report - cross reference with my notes and add in a few comments to the seizure report.  Some people may want to allow direct access but I think it would depend on how you use the diary and your relationship with your doctor/nurse. 

I do find the diary extremely useful and know it's really helpful for the medics trying to control my seizures.  They seem to appreciate the information.  From a personal point of view, I find it very helpful to keep track of what's going on: it enables me to provide fairly accurate information instead of a vague overview. 

Victoria

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