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toxic dilantin level
Mon, 11/03/2008 - 18:57Hi to everyone, I had a dilantin level surge up to 60.4, has anyone had a level that just surged this high before? I felt i was insane and no one could tell around me that i was out of this world, felt like i was living a bad dream. I can not think straight and it's been over a month since this happened. I take 400mg a night.
david
Comments
Re: toxic dilantin level
Submitted by friedemann on Fri, 2010-09-24 - 21:31
I am not so well informed, but I thought my doctor said what is good for me is 600 to 650 range. Like I said I don't know "exactly" what is meant by that. I take Dialantin 300mg per day. Has kept my mind clear and my body totally functional. I play tennis, ping pong,swim, dive,ride, bike, work in house construction, you name it Body weight 150 lb
Basically I was not "visibly sick" for 35 years.
Never ever got the seasonal flu, never got flu shots. I just get the exotic flues such as Asian flu(which lasted 3 days in bed) - then H1N1(which lasted 9 days and was "severe" I drank half a glass of water each day for that time period. (No food) Day 10 - over it and had breaky, lunch and supper. Even went to the supermarket.
Next day, I had the flu again(not as severe) but I was out of energy so I did not cook or eat for 14 more days. Now I have never been told this or experienced 2 diseases one after another in which I was again on a "diet".
So, I still kept popping in the medication each day as I have for the last 30 odd years. I was hardly using the bathroom(no food in=no food out)
I was just about at the end of the second flu(I think) when I awoke to see that I had seized(blood on the pillow "and no horses head". What the hey? Went into the bathroom and took morning meds as per usual. I felt the second seizure coming on, which is unusual as I have "grand mal" instantly unconscious type episodes.
Fact is I could get to a phone and as it looked complicated to work over the land line variety by Bell; I could not figure out how to get "dial tone" to call 911. Somehow I lucked out and it called my brother and I asked him to place the call for me because I could not.
I hear them arrive and cannot get to the front door to unlock it. My brother thought of the same thing and drove15 minutes to let in the responders.
I wake up in emergency after having 4 seizures. The hospital emerg was pumping in more dialantin into me.
By the time my doctor got there, I had (for what I remember him saying 3600 in me instead of 600 . So I was in detox in Jan and in February.
Now, I do not know anything about what the numbers mean.
Just telling you how my 2010 was brought in(as this is a Dec30 incident.) Going toxic really screwed my balance and ability to be normal. Defiitely need more info on my medic alert tag.
I am not so well informed, but I thought my doctor said what is good for me is 600 to 650 range. Like I said I don't know "exactly" what is meant by that. I take Dialantin 300mg per day. Has kept my mind clear and my body totally functional. I play tennis, ping pong,swim, dive,ride, bike, work in house construction, you name it Body weight 150 lb
Basically I was not "visibly sick" for 35 years.
Never ever got the seasonal flu, never got flu shots. I just get the exotic flues such as Asian flu(which lasted 3 days in bed) - then H1N1(which lasted 9 days and was "severe" I drank half a glass of water each day for that time period. (No food) Day 10 - over it and had breaky, lunch and supper. Even went to the supermarket.
Next day, I had the flu again(not as severe) but I was out of energy so I did not cook or eat for 14 more days. Now I have never been told this or experienced 2 diseases one after another in which I was again on a "diet".
So, I still kept popping in the medication each day as I have for the last 30 odd years. I was hardly using the bathroom(no food in=no food out)
I was just about at the end of the second flu(I think) when I awoke to see that I had seized(blood on the pillow "and no horses head". What the hey? Went into the bathroom and took morning meds as per usual. I felt the second seizure coming on, which is unusual as I have "grand mal" instantly unconscious type episodes.
Fact is I could get to a phone and as it looked complicated to work over the land line variety by Bell; I could not figure out how to get "dial tone" to call 911. Somehow I lucked out and it called my brother and I asked him to place the call for me because I could not.
I hear them arrive and cannot get to the front door to unlock it. My brother thought of the same thing and drove15 minutes to let in the responders.
I wake up in emergency after having 4 seizures. The hospital emerg was pumping in more dialantin into me.
By the time my doctor got there, I had (for what I remember him saying 3600 in me instead of 600 . So I was in detox in Jan and in February.
Now, I do not know anything about what the numbers mean.
Just telling you how my 2010 was brought in(as this is a Dec30 incident.) Going toxic really screwed my balance and ability to be normal. Defiitely need more info on my medic alert tag.
Re: toxic dilantin level
Submitted by Cheeky Danielle on Thu, 2010-10-21 - 20:04
Hi, I am from Australia and our therapeutic levels for Phenytoin, (Dilantin) are between 40 - 80. Monthly blood tests are done and my levels hover around 50, 52.
Have recently been in hospital and they doubled my dose of Dilantin from 200mg to 400mg. On discharge blood was not taken to check my levels. Why the hospital doubled my dose, I do not know! When questioning the amount it was relayed to me that that is what the Dr has prescribed! No follow up blood test was taken prior to discharge.
A week later I was having trouble seeing, walking, coordination, had severe shakes in my hands and legs and was vomitting every couple of hours or so. I couldn't even dive. My GP arranged a blood test which the reading came back as 169!! Dilatin was stopped immediately and another blood test taken 4 days later. This reading was 146!!! Still too high for our "therapeutic levels" Was told by my specialist that it may take 3 - 4 days to reduce my levels. In the mean time do not take any Dilantin or Lamictal.
The next blood test has been organised for this Monday, (3 days away). Will see if my levels have dropped. My specialist has told me that I am TOXIC.
Hi, I am from Australia and our therapeutic levels for Phenytoin, (Dilantin) are between 40 - 80. Monthly blood tests are done and my levels hover around 50, 52.
Have recently been in hospital and they doubled my dose of Dilantin from 200mg to 400mg. On discharge blood was not taken to check my levels. Why the hospital doubled my dose, I do not know! When questioning the amount it was relayed to me that that is what the Dr has prescribed! No follow up blood test was taken prior to discharge.
A week later I was having trouble seeing, walking, coordination, had severe shakes in my hands and legs and was vomitting every couple of hours or so. I couldn't even dive. My GP arranged a blood test which the reading came back as 169!! Dilatin was stopped immediately and another blood test taken 4 days later. This reading was 146!!! Still too high for our "therapeutic levels" Was told by my specialist that it may take 3 - 4 days to reduce my levels. In the mean time do not take any Dilantin or Lamictal.
The next blood test has been organised for this Monday, (3 days away). Will see if my levels have dropped. My specialist has told me that I am TOXIC.
Re: toxic dilantin level
Submitted by myles on Sun, 2010-06-06 - 20:44
I have no idea how you could even function at that high of level. I was getting very very tired and sleepy over the last few days, also stumbling alot. I was pretty sure it was my dilantin level and it was, 22. I cut back the next 3 days and I was down to 17 but my seizures started all over again. 30 yrs and I still can't win.
I take tegretol, lyrica, lamictal, dilantin, and ativan. And when I don't feel right (what I call riight for me but would be sick for normal people) I get my levels checked. I have them checked every 3 months anyway.
I hope you start to feel better soon. Good luck.
I have no idea how you could even function at that high of level. I was getting very very tired and sleepy over the last few days, also stumbling alot. I was pretty sure it was my dilantin level and it was, 22. I cut back the next 3 days and I was down to 17 but my seizures started all over again. 30 yrs and I still can't win.
I take tegretol, lyrica, lamictal, dilantin, and ativan. And when I don't feel right (what I call riight for me but would be sick for normal people) I get my levels checked. I have them checked every 3 months anyway.
I hope you start to feel better soon. Good luck.