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Need so much help with my daughter
Tue, 02/02/2010 - 20:43Topic: Living With Epilepsy - Youth
Hello I have a daughter that is 16! Myranda has been diagnosed with severe epilepsy since 07! She has taken a total of 5 different meds! she is currently max out on Topamax & Lyrica plus she had the VNS installed in sept 09! we still have not been able to control her seizures! She had 33 last year & 28 the year before! She also has 3 different types of seizures! I am having trouble with the inablity to control them! We are in constant batlle because we hold her back from several "teenage things"! We are strict, but we believe its for her own good since she has fallen and been hurt! Please help me we are so overwhelmed with the situation!
Comments
Re: Need so much help with my daughter
Submitted by samoahmad on Sun, 2010-06-06 - 16:08
I would suggest you apply for a seizure alert dog, she can gain some freedom as well as you gaining some confidence in letting her do things, since she has a severe case of epillepsy..sorry about your situation, I would also suggest you go to a center that specializes in epilepsy, so you are sure shes on the right meds...I wish you the best of luck...
Re: Need so much help with my daughter
Submitted by samoahmad on Sun, 2010-06-06 - 16:09
this is a website for alert dogs k94life.org
Re: Need so much help with my daughter
Submitted by jhennip on Sat, 2010-06-05 - 22:47
I am so sorry to hear about your daughter. My daughter, now 9 months, was diagnosed with epilepsy three months ago and it is a roller coaster ride. Have you sought more than one opinion? I know that it can take quite a few different meds before the right match is found. However, it never hurts to see what another neurologist (better yet, epileptologist) has to say. Best of luck to you - God Bless.