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One seizure was enough

Mon, 07/03/2006 - 21:27
Hi, All, I'm new here--stopped by the site looking for info after having my first (and so far, knock on wood, only) seizure two weeks ago. I'm 28. It scared the daylights out of me and my family. My EEG and MRI were clear. Doctor said right now the best thing to do is try to stay healthy and wait and see what happens next--that if something's wrong, I'll have another. Could be just a fluke or a blood sugar thing, etc. I'm sure you folks know the possibilities better than I. I would like to perhaps get a second opinion (did not love neurologist #1) and keep gathering information. Anybody else had just one? Or have any advice for me in this uncertain time?? Thanks for providing this place for support and info, y'all...I appreciate it. --w.e.

Comments

Hi Derek,Exactly the same

Submitted by Epilepticman on Mon, 2019-04-29 - 05:20
Hi Derek,Exactly the same happened to me 12oure ok. years ago identical to both shoulders and then I had another one 5 years later which fractured my spine.I am on 2 x 500mg Epilim now for life and have not had another one since but body is wrecked now. Hope you're ok.

Hello.  I too just

Submitted by hustedderek on Fri, 2017-11-03 - 23:43
Hello.  I too just experienced my very first siezure at 31 years old.  I had a very powerful grand mal siezure that lasted 2 1/2 minutes. The strength of my siezure was very powerful in my upper body.  My neck locked, I bit through my tongue, my shoulders dislocated bilaterally, my humerus heads both fractured, and one of my biceps ripped partially through.  I just saw my neurologist today and he decided to not only ease my mind, my family's mind, and prevent further damage to my body, to start me on 1000mg Keppra daily to prevent a future siezure.  The destruction of the first is causing me to have numerous appointments, tests, and shoulder and arm surgery.  I hope the Keppra works and prevents another siezure but thus far we have found no cause as to why it happened.  My labs were normal and my CT head was normal in the ER.  I am further going for an MRI of the Brain with and without contrast and an EEG.  I'm certainly glad to know I'm not alone in this type of thing happening.  Good luck with everything everyone!  Derek H.

Re: One seizure was enough

Submitted by infamousmj on Tue, 2009-11-24 - 02:09
Hi all, So I had my one and only Grand Mal seizure about 8 months ago and I am 25. I had a clear EEG, MRI and CT scan. I did not feel an "aura" (I don't think so anyway) prior to my seizure. There is also no history of seizures in my family. I have not been placed on any drugs, I have my drivers license back and I feel good. I do get paranoid once in awhile that it will happen again which is not the greatest feeling but I can only imagine how people feel when they have to deal with Grand Mals on a regular basis. There has been no direct trigger to my seizure, however doctors feel that it was cause due to a variety of reasons. - I was using heavy cleaning products the day before - I drank heavily the night before - I didn't eat very much between drinking and the afternoon the next day - I was stressed out prior to having my seizure - I only got a few hours of sleep the night before - I drank sugary pop prior to my seizure & caffeine - I was on my period So other than illness, my body was experiencing all of the things that lower your seizure threshold. Since the seizure I have stated doing yoga and eating much better. I still drink alcohol but not as much and I make sure to eat and drink water before, during and after I drink. I also make sure to get a good sleep and not try to commit to too many obligations at once. I am hoping that the seizure was just a wake-up call for me to start treating my body better. I am hoping that if I eliminate most of the factors listed above from by daily life especially at the same time, I will not have a seizure again. Unfortunately anyone I know for sure who has had a seizure has not had just one which also scares me. There also doesn't seem to be a whole lot of people on here who have had just one. I do assume though that many people who only have one move on eventually and feel little need to post comments. As you can see it's been 8 months and I am still worrying about it, it's not a constant worry but it is always in the back of my mind. I have read that if you are in the "low-risk" seizure category, the chances of having another are 30-40% which is a bit better than 50% at least. Let me know if you have had another one and what your circumstances were. Good luck.

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