PNES- NON EPILEPTIC SEIZURES

Re: PNES- NON EPILEPTIC SEIZURES

Submitted by tnsister73 on Tue, 2010-04-27 - 15:45

Hello,

I am going through this with my mother right now...It is vert frushtrating to me...I really think a lot of her problems were just simply drama, needing attention?? Wasn't sure and still not sure. The drs. can not seem to figure out what is wrong with her. Every time she is set to go to have an MRI or EEG she has an "Episode" and she is diverted to the ER via my dad. So, in saying that...I did some research and found PNES, the symptoms fit her to a tee. I brought this info to her attention and you would have thought I was calling her a liar...oh my goodness..how does one try to help someone when they don't want to help themselves?? She has a list of medical problems that now I am not sure are even factual?? Fibromyalgia, Perrifrial Neuropothy, Depression, COPRD, Asthma...ect. But, when she is alone or center of attention, her problems are under control...when she is not and then she studders, muscle twitches, bad head aches, looks confused...is this real or is she just an attention seeker?

Thanks,

Heather

Ive been living with pnes for

Submitted by rastanewport@gmail.com on Thu, 2014-11-06 - 13:12

Ive been living with pnes for 6 years now. Since I was twelve. I have ptsd from a trauma that occurred when I was ten years old. Throughout the end of middle school and all of high school Ive struggled with having these seizures in class, public, and alone. When I go out I am rendered unconscious and do not respond nor do I hear anything, but sometimes experience short visuals similar to dreams. When I was in school....I wasn't really in school, I had yo forfeit the majority of my education because of fear of falling down high school stairs, which resulted in many concussions, and passing out and seizing in front of my class mates. People mostly shied away from me because of it, and the ones who didn't most of the time just felt bad for me. I've ran up the hospital co pay debt for my parents because of the ambulance was called when they weren't thereto say no, however most of high school there was a plan set up so they wouldn't be called expect if there was an apparent physical injury. I've had quite a few run ins with teachers treating me poorly because of it. I developed a sleep disorder and fell into depression and my anxiety raised through the roof, mostly because I was stuck at home most of the time and my social meets were limited. I mostly only deal with the insane anxiety, and occasionally a depression spell, but who doesn't deal with that. Being 18 I can now tell the ambulance drivers to not take me, granted I'm conscious. I have a part-time job at gamestop and I couldn't ask for a more accommodating boss. I hate that word accommodation. I've been hearing it all of my young life. My seizures mimic epilepsy but sometimes more violent and can last any where from 3 minutes to 3 hours and usually are pretty painful in the muscles and if it hit something when I fell. I have a great boyfriend who deals with it well, and all of my friends as well. I can't exactly get ny license at the moment, but I'm working on getting 2 jobs and moving out. Pnes has most certainly helped me grow up considerably faster than other kids, and somehow taught me a lot about life. Sometimes I get depressed wondering if they'll every go away, but then I snap out of it and realize while it's a pain in the ass, it could always be a lot worse. If you have questions or anything I'd love to hear