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Does Epilepsy Get Worse With Aging?
Fri, 03/19/2010 - 01:29Comments
Re: Does Epilepsy Get Worse With Aging?
Submitted by tara michelucci on Fri, 2010-03-26 - 13:33
Re: Does Epilepsy Get Worse With Aging?
Submitted by jubatum on Fri, 2010-03-26 - 15:37
I'm experiencing the same thing as you!!! Mine is getting worse NOT better!
I've also experienced the weird visial distortions when I wake up in the morning.. bright lines/bright spots. My scar tissue from a brain injury is in my occipital lobe. Usually my auras are flashy lights on the left side but these bright lines are WEIRD!
I've had to switch drugs last nov and up doses and just mess around all together. I was also wondering the same thing is epilepsy got worse with aging, I used to be sooo controlled.. stay up late drink like a fish. Now I do none of that for fear it will mess with me.
i'm really glad you posted :)
Heather
I'm experiencing the same thing as you!!! Mine is getting worse NOT better!
I've also experienced the weird visial distortions when I wake up in the morning.. bright lines/bright spots. My scar tissue from a brain injury is in my occipital lobe. Usually my auras are flashy lights on the left side but these bright lines are WEIRD!
I've had to switch drugs last nov and up doses and just mess around all together. I was also wondering the same thing is epilepsy got worse with aging, I used to be sooo controlled.. stay up late drink like a fish. Now I do none of that for fear it will mess with me.
i'm really glad you posted :)
Heather
Re: Does Epilepsy Get Worse With Aging?
Submitted by Jos on Fri, 2010-03-26 - 10:11
I am a caregiver for my cousin who is now 43 years old - His nuerologist never really showed us or explained much to us over the years - My cousin who had lived with his mother until now was given a "Cocktail of Drugs" w/o doctor supervision - they never made appt to see him and one drug we found out "Keppra" causes extreme behavori aggitation etc. The reason I am explaining this is b/c my cousins seizures increased to where he refused to go out of the house - he was stuck in an induced drug state - I took him out of his environment and started to get our community involved - regulated his meds and we are currenly looking into better treatment - we still at this time do not have all the answers - but what i've learned is please continue to investigate new drugs - this epilepsy forum is great! I believe your siezures can get worse in time if you stay stuck and become afraid to leave your house. My cousin has been suffering with this for over 32 years! Will fall up to ten times a day everyday.
Lennox-Gastaut Syndrome
I am a caregiver for my cousin who is now 43 years old - His nuerologist never really showed us or explained much to us over the years - My cousin who had lived with his mother until now was given a "Cocktail of Drugs" w/o doctor supervision - they never made appt to see him and one drug we found out "Keppra" causes extreme behavori aggitation etc. The reason I am explaining this is b/c my cousins seizures increased to where he refused to go out of the house - he was stuck in an induced drug state - I took him out of his environment and started to get our community involved - regulated his meds and we are currenly looking into better treatment - we still at this time do not have all the answers - but what i've learned is please continue to investigate new drugs - this epilepsy forum is great! I believe your siezures can get worse in time if you stay stuck and become afraid to leave your house. My cousin has been suffering with this for over 32 years! Will fall up to ten times a day everyday.
Lennox-Gastaut Syndrome