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vns surgery
Tue, 03/09/2010 - 18:58Comments
Re: vns surgery
Submitted by bempey on Wed, 2010-03-17 - 21:01
Re: vns surgery
Submitted by pembry on Fri, 2010-06-18 - 14:14
Hi all,
Do you know where I could get a VNS device? How much is it? My brother got epilepsy since 4 years old, now he is 39 years old, but he is in a status and with no control with medications.
Could you help me please?
regards,
Pat
Hi all,
Do you know where I could get a VNS device? How much is it? My brother got epilepsy since 4 years old, now he is 39 years old, but he is in a status and with no control with medications.
Could you help me please?
regards,
Pat
Re: vns surgery
Submitted by asfr72780 on Wed, 2010-03-10 - 00:07
OMG! I am 29 (almost 30) going through the same thing as your daughter! I'm debating the same surgery. I'm so glad to know someone out there is somewhat like me. As for Medicaid, I'm having a hard time with them, they keep denying me coverage saying 'Epilepsy is not considered a disease' or something to that effect. I've tried 3 times to get them to help with me, they just help my kids. What are your thoughts about VNS? I just learned about it tonight, trying to find out as much pros & cons as I can, wanting to hear people responses though, not just what reports & doctors say. I was diagnosed at 2. Just found out today they are becoming worse, but the side effects are; like you say, unbearable. It's like deciding between being less functional in life and having less seizures; or becoming functional & having seizures...either way is bad. I don't know whether to be angry, cry, or something else. I work in an OB Gyn office, I don't like my patients to see how the medications are effecting me, but I love my work. What do you do...
Keep me posted on what u decide & I'm actually in the process of trying again for medicaid (4th time, cross fingers), I'll see what I can find out. I'm in Texas though, I don't know where your at or if the same "requirements" apply.
OMG! I am 29 (almost 30) going through the same thing as your daughter! I'm debating the same surgery. I'm so glad to know someone out there is somewhat like me. As for Medicaid, I'm having a hard time with them, they keep denying me coverage saying 'Epilepsy is not considered a disease' or something to that effect. I've tried 3 times to get them to help with me, they just help my kids. What are your thoughts about VNS? I just learned about it tonight, trying to find out as much pros & cons as I can, wanting to hear people responses though, not just what reports & doctors say. I was diagnosed at 2. Just found out today they are becoming worse, but the side effects are; like you say, unbearable. It's like deciding between being less functional in life and having less seizures; or becoming functional & having seizures...either way is bad. I don't know whether to be angry, cry, or something else. I work in an OB Gyn office, I don't like my patients to see how the medications are effecting me, but I love my work. What do you do...
Keep me posted on what u decide & I'm actually in the process of trying again for medicaid (4th time, cross fingers), I'll see what I can find out. I'm in Texas though, I don't know where your at or if the same "requirements" apply.