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Ocular Migraines and Simple Partial Seizures

Mon, 05/12/2008 - 08:30

Hi Everybody,

About three years ago I had my first ocular migraine.  It started out as a small blank spot in the front of my vision and then spread out to my peripheral vision.  I had a blind spot and sparkling lights for about 20 minutes.  During this time I also had trouble reading, which scared me, so I went to the hospital.  They told me I had experienced an ocular migraine so they sent me home.

 After about 6 months I had another similar experience and then went another year before having another.  Althogether, I have only had 3 of these migraines.

After my first migraine, however, I started noticing that almost daily I would see a single black dot in the center of my vision when I'd blink.  It lasts about 10 seconds and then disappears.  Eventually, I got nervous enough to go to the neuro about it and she tested me for epilepsy.

My EEGs (30 min and 24 hour ambulatory) came back slightly abnormal, but other tests (MRI, corotid artery) were totally fine.  I am currently taking 500 mg of Keppra 2x day but am still seeing the black dots.  They seemed to disappear when I wasn't stressed out during the summer, but have reappeared this year (I'm in a one year Master's program and am job hunting, etc. so I'm really stressed!!)

Does anyone have anything similar to this? I'm going to call my neuro today to see if it's strange that the dots haven't disappeared.  She said that it could only be simple partial seizures or migraines.  Any similar stories would be appreciated!

-April

Comments

Re: Ocular Migraines and Simple Partial Seizures

Submitted by kepraXR on Fri, 2010-03-05 - 17:42
You basically just explained my seizures. Reccomendation? Neuroopthamologist (TOTALLY butchered that but it is a neurologist/eye doctor.). The same thing happens to me. I've only had four of the migraines but have vision problems every day, basically twenty four hours a day. My eyes seem to not be able to focus, sort of like on a digital camera screen. It takes a while to focus on the things that are around it. I also have little white spots, not black. Like flashes of light in the corners of my eyes. I am on Keppra XR which has helped somewhat and is nice because there aren't any knock off brands. My eyes are especially worse flourecent lights and when I am stressed. Hope this similiar story helps. :) 

Re: Ocular Migraines and Simple Partial Seizures

Submitted by westtxmom on Fri, 2010-04-23 - 15:21

I have a question as well...I also, have very severe migraines.  I also suffer from fibro myalgia.   Many times a month I can become incapciated from a migraine.   I am on seizure medication, and a grocery list of other medications to try to help control them, even though it doesn't seem to help sometimes.  However, I will have some that I can function with.  It is those that I have a question about. 

Many times, it seems as though, this may sound odd, my vision jumps.  As though my eyes are jerking around.  I usually have to stop what I am doing and move slower because I lose my bearing very easily.  My neurologist simply attributes it to the swelling in my head from the migraine.  It really makes me wonder.  This has become progressively worse over the past year and I really don't know what I should do.

Does anyone else out there experience anything like this?  Or have you heard of something similar to this?  Help!  I need some advice!  A friend told me she heard something called eye seizures, I googled it, and it brought me to this website, I hope I can get some answers.

I have a question as well...I also, have very severe migraines.  I also suffer from fibro myalgia.   Many times a month I can become incapciated from a migraine.   I am on seizure medication, and a grocery list of other medications to try to help control them, even though it doesn't seem to help sometimes.  However, I will have some that I can function with.  It is those that I have a question about. 

Many times, it seems as though, this may sound odd, my vision jumps.  As though my eyes are jerking around.  I usually have to stop what I am doing and move slower because I lose my bearing very easily.  My neurologist simply attributes it to the swelling in my head from the migraine.  It really makes me wonder.  This has become progressively worse over the past year and I really don't know what I should do.

Does anyone else out there experience anything like this?  Or have you heard of something similar to this?  Help!  I need some advice!  A friend told me she heard something called eye seizures, I googled it, and it brought me to this website, I hope I can get some answers.

Re: Ocular Migraines and Simple Partial Seizures

Submitted by klhappytime on Thu, 2011-11-10 - 01:21
I have been having this problem since I was 7 years old, I am now 34. I have had at least 30 of these headaches if not more. When I was a kid they would give me vicodin. It NEVER helped. Last year I had an increase in these headaches and missed a lot of work because of them. I went to a neurologist who prescribed every medication in the migraine world to no avail. Finally she said she gives up on conventional medicine and told me to take a vitamin B complex daily. It worked. The funny lights in your eyes are called an aura. Sometimes I will get an aura, but I will try to ignore it. It will go away now. Someone told me vitamin B helps with stress. I never knew I was stressed, guess I was, cause now I'm ok. I encourage anyone with these symptoms to go to a doctor right away. My symptoms have gotten worse over the years. Most recently I was getting an aura, losing depth perception, vomiting violently, had numbness in my extremities, loss of comprehension, loss of ability to speak. Bad stuff, but also common symptoms of stroke. So take this very seriously. It is better to be cautious and seek help than to try to fix it yourself and have it be something more serious than a headache. My grandmother also get these, and she has been hospitalized twice in the last 5 months because they thought she was having a stroke. Hope this helps.  

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