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involuntary jerks of left side of body with head jerking right
Mon, 01/25/2010 - 07:26Just wanted to give as much info as possible to start, for anyone out there that something might click with and can help with figuring this out. I'm praying for wisdom. Thanks so much.
Comments
hi
Submitted by woolyjulie72 on Tue, 2010-01-26 - 15:30
Hi Terri ,
I just want to say that i get myoclonic jerks daily aswell sometimes 1 or 2 or sometimes ALOT more ,
What i want to say is when i read on you message about what your daughters neuroligist said reg it being psychogenic and she needs to see a therapist reminds me of what i have just been through with mine , he had me reffered to a psychiatrist because he believe i had psycological probs !!!! i was gutted when i found out and until i was due to go i treated it as a joke but the week before i was so scared , when i went and the psych called me in we spoke away & he took it i had asked to come and see him so i explained he said " as far as i am concerened there is no need at all for you to be here " i left with tears running down .
I do not believe that alot of neuro's remember that we are all human beings aswell i can relate to you so much and my heart goes out to you but you have to stand your ground as the other lady says get a new neuro i was not slow in asking for a new one and i got one you have to let them know what is happening , am always here if you need to talk keep your chin up and stand your ground
Julie xxxxxx
Hi Terri ,
I just want to say that i get myoclonic jerks daily aswell sometimes 1 or 2 or sometimes ALOT more ,
What i want to say is when i read on you message about what your daughters neuroligist said reg it being psychogenic and she needs to see a therapist reminds me of what i have just been through with mine , he had me reffered to a psychiatrist because he believe i had psycological probs !!!! i was gutted when i found out and until i was due to go i treated it as a joke but the week before i was so scared , when i went and the psych called me in we spoke away & he took it i had asked to come and see him so i explained he said " as far as i am concerened there is no need at all for you to be here " i left with tears running down .
I do not believe that alot of neuro's remember that we are all human beings aswell i can relate to you so much and my heart goes out to you but you have to stand your ground as the other lady says get a new neuro i was not slow in asking for a new one and i got one you have to let them know what is happening , am always here if you need to talk keep your chin up and stand your ground
Julie xxxxxx
Re: jerks of left side of body with head jerking right
Submitted by Terri Lynn on Tue, 2010-01-26 - 21:27
Thank you so much for your post. I am also realizing that the hormone she has taken the last has been the cause of her weight gain being that it is considered a steriod. Effecting her body not just the 1 wk she takes it every 3-4 months but a continual effect. I plan to get her to both a new neurologist as you agree and also again to a gyn as to why she has amenorrhea. That is interesting about the depakote absorbtion. I will have to research that one again, because I thought I read somewhere last night that the hormone medroxyprogesterone did not interact. Thank you again. God Bless!