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Clobazam

Fri, 12/14/2007 - 21:18
I was wondering if anyone has tried Clobazam.  If so, what are your experiences with the drug?  We are going to start this next week.

Comments

Re: Clobazam

Submitted by carmenk on Fri, 2010-01-22 - 17:16
My son (3 y.o at the time) started clobazam last summer (2009) in combination with his tegretol.  We have had pretty good success althought it was a really hard start for him.  the cloabazam made him so dizzy it was like he was drunk.  He slept a lot and was pretty fall-down dizzy for about 6 -8 weeks until he got used to it.  Now he is dizzy once in a while, but not often and it is controlling his seizures better.

Re: Clobazam

Submitted by bella05 on Fri, 2010-01-22 - 18:07
 Hi my daughter is has been on clobazam and number of other medications and in my opinion she has been doing very well.  We are going to start a new medication called Steripentol next week. 

Re: Clobazam

Submitted by riptide10x on Fri, 2010-01-29 - 15:04
My 20 year old son developed epilepsy 1 1/2 yrs. ago as a result of encephalitis. Since then he has been on about 10 different AEDs, none of which would fully control his seizures. About 2 weeks ago one of the neurologists suggested Clobazam, I had to order it from Canada because you can't buy it here in the U.S. They stopped the Klonopin at the same time he started the Clobazam because they are in the same family of medications. Once he got up to the theraputic dose of Clobazam he has had only one mild seizure and two aura's over the past two weeks , which is a huge improvement for him. Besides that, it's as if he has come out of the fog of Klonopin. He stopped the drooling, his memory has improved dramatically and his thoughts and words come to him much quicker and easier. Clobazam has made the most positive change in our lives since this whole thing started, and I just hope it continues and he doesn't become resistant to it or something. However, the one thing I have learned throughout this ordeal is that everyone responds differently to each medication. That's what is so frustrating to everyone involved, and each new drug takes months to see if it will work or not. We haven't noticed any negative side effects from the Clobazam ,other than the fact that your insurance won't pay for it. I don't care though, I would pay anything to keep him seizure free, so I'll just find away to deal with the cost. Good luck to you.

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