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Treat seizures with Hyperbaric Oxygen Therapy

Sun, 08/26/2007 - 22:31
I haven't seen anything here about treating seizure disorders with Hyperbaric Oxygen Therapy (HBOT). I'm really quite surprised. I've seen amazing successes for my daughter as well as others with seizure disorders since beginning HBOT treatments several years ago. Has anyone had any experience with HBOT?

Comments

Re: Treat seizures with Hyperbaric Oxygen Therapy

Submitted by beckylaing1983 on Tue, 2010-01-12 - 07:41

Hi there,

I hope you get this, i was wondering if your daughter is still having the treatment? and how it has helped, my daughter is 3 and on the keto diet and like your little girl it has helped lots, but wondered if this treatment would help with her development delay?

 

Many Thanks

Becky

Hi there,

I hope you get this, i was wondering if your daughter is still having the treatment? and how it has helped, my daughter is 3 and on the keto diet and like your little girl it has helped lots, but wondered if this treatment would help with her development delay?

 

Many Thanks

Becky

Re: Treat seizures with Hyperbaric Oxygen Therapy

Submitted by kkscott1 on Mon, 2010-07-19 - 17:02

Our 8 yr old daughter has E, microcephaly, global dev delays, apraxia......,etc. She had tonic-clonic seizures for 3 years and is taking topomax, lamictal and trileptal.  She has diastat for breakthrough seizures.  She started going in the hyperbaric chamber  3 times a week for 1 hr per session in January of 2010.  The unit is a reclining cylinder that fits both of us inside, where we watch her DVDs and relax. She sometimes has trouble with the pressure, as it increases, but they allow me to slowly increase it, for her comfort. We are extatic to report that she has not had any tonic-clonic seizures since the first treatment.  She was having multiple events per day at her worst point, and at the time she started with hyperbarics, she was down to about two per week.  She was so lethargic that most days, she could not get out of bed.  She missed out on school and family activities for 3 years, because she had no energy.  She now is back to the little girl that we knew before she started having seizures- smiling and bouncing off the walls with energy.  She is now able to attend school and go on outings with the family.   We had stopped taking family vacations, because she always ended up in the E.R.  We are hoping to go on a vacation now, because she is doing so well.  She also had chronic constipation, which was treated with miralax.  She is no longer on anything for constipation, and is doing well.  She has shown remarkable advances in her language development since begining the hyperbaric treatments.  She was non-verbal until age 5 1/2 years.  Now, after being seizure free for 6 months, she is able to string 7 words together! We could not be more pleased, and hope this information helps others with epilepsy and/or other disorders. 

Our 8 yr old daughter has E, microcephaly, global dev delays, apraxia......,etc. She had tonic-clonic seizures for 3 years and is taking topomax, lamictal and trileptal.  She has diastat for breakthrough seizures.  She started going in the hyperbaric chamber  3 times a week for 1 hr per session in January of 2010.  The unit is a reclining cylinder that fits both of us inside, where we watch her DVDs and relax. She sometimes has trouble with the pressure, as it increases, but they allow me to slowly increase it, for her comfort. We are extatic to report that she has not had any tonic-clonic seizures since the first treatment.  She was having multiple events per day at her worst point, and at the time she started with hyperbarics, she was down to about two per week.  She was so lethargic that most days, she could not get out of bed.  She missed out on school and family activities for 3 years, because she had no energy.  She now is back to the little girl that we knew before she started having seizures- smiling and bouncing off the walls with energy.  She is now able to attend school and go on outings with the family.   We had stopped taking family vacations, because she always ended up in the E.R.  We are hoping to go on a vacation now, because she is doing so well.  She also had chronic constipation, which was treated with miralax.  She is no longer on anything for constipation, and is doing well.  She has shown remarkable advances in her language development since begining the hyperbaric treatments.  She was non-verbal until age 5 1/2 years.  Now, after being seizure free for 6 months, she is able to string 7 words together! We could not be more pleased, and hope this information helps others with epilepsy and/or other disorders. 

Re: Treat seizures with Hyperbaric Oxygen Therapy

Submitted by kmartelle on Wed, 2012-07-04 - 13:53

Hi,

I know it has been some time since you posted this comment but I am curious about your Daughter's HBOT. I would greatly appreciate some more information on this treatment as my little girl who is now 7 shares many of the same difficulties your girl did. It sounds promissing. I would like to know where and how much the treatments are. Also if your doctors gave you a hard time about it. My Daughter's doctor told us that it is not proven to do anything. Do I beleive everything he tells me? Heck NO! My daughter has had placental stem cell treatment twice and that has helped her significantly but like other alternative therapies it works best with maintainence treatment and we can not afford to keep it up. Being an experiemental treatment, as is the view in Canada, treatments are not offered here and we can not get funding for it, I think the same goes for HBOT.

Thanks for your post and if you are still following this post I would love to pick your brain.

Hi,

I know it has been some time since you posted this comment but I am curious about your Daughter's HBOT. I would greatly appreciate some more information on this treatment as my little girl who is now 7 shares many of the same difficulties your girl did. It sounds promissing. I would like to know where and how much the treatments are. Also if your doctors gave you a hard time about it. My Daughter's doctor told us that it is not proven to do anything. Do I beleive everything he tells me? Heck NO! My daughter has had placental stem cell treatment twice and that has helped her significantly but like other alternative therapies it works best with maintainence treatment and we can not afford to keep it up. Being an experiemental treatment, as is the view in Canada, treatments are not offered here and we can not get funding for it, I think the same goes for HBOT.

Thanks for your post and if you are still following this post I would love to pick your brain.

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