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Changing from Dilantin to Clobazam
Fri, 02/22/2008 - 18:03Hi everyone, I am just new here but have had epilepsy for 20 years. I have recently had a few seizures, now my meds are being changed to clobazam. Due to the side effects of long term Dilantin use. I take grand mal seizures and am a bit nervous if this clobazam 10mg a day will be as effective at the 300 mg of dilantin a day i take now? Can anyone help ease my worry?
thanks Niki
Re: Changing from Dilantin to Clobazam
Submitted by davnic13 on Tue, 2009-12-15 - 18:41
Hi Nikic,
My story is a bit different but you might pick up some stuff from it. I was recently on a combination of clobazam and lamictal, 10mg of clobazam am/pm and 300mg lamictal am/pm. The regularity of my complex partial seizures decreased but the severity of them increased when i did have one. The neuro then increased my clobazam to 20mg at night because mine are generally nocturnal, this however still didnt help. He mentioned that with clobazam people can build up a tolerance to it and their levels would need to continue increase to manage their seizures, but coming off it is very hard. When i went to see him last month i mentioned this and said that i dont want to keep increasing my levels. He then decided to reduce my clobazam levels back to 10mg, but add in dilantin aswell. I am now on my original levels of lamictal and clobazam along with 300mg of dilantin at night. The past month has been good but im just waiting to see what happens next.
Good luck with your change.
Hi Nikic,
My story is a bit different but you might pick up some stuff from it. I was recently on a combination of clobazam and lamictal, 10mg of clobazam am/pm and 300mg lamictal am/pm. The regularity of my complex partial seizures decreased but the severity of them increased when i did have one. The neuro then increased my clobazam to 20mg at night because mine are generally nocturnal, this however still didnt help. He mentioned that with clobazam people can build up a tolerance to it and their levels would need to continue increase to manage their seizures, but coming off it is very hard. When i went to see him last month i mentioned this and said that i dont want to keep increasing my levels. He then decided to reduce my clobazam levels back to 10mg, but add in dilantin aswell. I am now on my original levels of lamictal and clobazam along with 300mg of dilantin at night. The past month has been good but im just waiting to see what happens next.
Good luck with your change.